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Shout what really gets you angry!!!!
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stortfordrose1
stortfordrose1
Last activity on 21/04/2022 at 15:53
Joined in 2015
5 comments posted | 4 in the Muscles / Skeleton / Joints Forum
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@Izzyjamal Hello there, you sound a lot like me , carry on through pain dispite how you are feeling, I've not spoken to some of my family since i left my abusive marriage in 1997, 2 of my children do not contact me, one does but only at xmas and birthday time, just a card, i am on a lot of pain medicines, gabapentin which does not ease my pain, codydromol, morphine 30mg twice a day, I'm going to the dr to ask about pain management clinic which the hospital back dr recommends, im getting pins and needles in my legs around 100 times per day, aways in pain, got nurmourous problems with my back the back dr told me on may 28th when i saw him, but won't do anything for me, i did ask about back injections which was replied with they only last 6/8 wks , feel no one wants to know about my pain, im in agony most days, have to take pain pills then get on and do things, i have a partner that works so im here on my 0wn all day, got a dog, but cannot walk him because of my back, i train him up and play with him the best i can, i do housework, laundry , ironing, gardening the best i can do, i do feel your pain, sorry about your situation, but im always here for you, always, take care sweetheart christine
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christine brailsford
Izzyjamal
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Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
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Good Evening to All My Dearest Friends!!!!
Muscular Atrophy Charity awarded me a New MAC and my Mobility Scooter that is so beautiful it’s Orange!!!!
TO ALICE BLACK MY BEAUTIFUL LADY THAT HELPED ME SO MUCH!!!!!
Ladies I’m over the moon!!!!
I have a New MAC my Laptop “died” almost a year ago!” Now I have a MAC that takes in account my limitations!!!
My Mobility Scooter is my Dream it’s Orange!!!! One of my favourite colours!!!!
I am so happy 😀.... Pain ??? No chance!!!! My impaired balance????? My Fatigue??? My “Everything!!” I DONT CARE I HAVE MY DREAM THAT COME TRUE!!!
And, my Hoover “died....!” But Thanks to Turns2Us I have a Charity that will buy me a very “light and with power steering!!!” So I can keep this Flat Beautiful and Clean!!!
AND I HAVE MY YANKEE CANDLES BURNING!!!!!
HAPPY HAPPY 😃!!!!
LOVE AND HUGS 🤗
IZZY. 😘
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Isabel Amaro
Izzyjamal
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Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
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@stortfordrose1 BE STRONG!!!!
I AM ALWAYS HERE!!!!
LOVE AND HUGS 🤗
IZZY 😘
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Isabel Amaro
stortfordrose1
stortfordrose1
Last activity on 21/04/2022 at 15:53
Joined in 2015
5 comments posted | 4 in the Muscles / Skeleton / Joints Forum
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Thank you so much Izzy, i hope you are not too bad today with your pain, I'm in pain with my back today and my tingling i get in my damm legs, had to clean up the house today and did laundry, also went out and cut the grass back and front, had to keep stopping and take my inhaler, i have asthma, and sweat was pouring down my face, was exhausted when i had done that job, but its done now and looks ok, had lunch then watched some shows i recorded and now checking mails on here, my partner won't be home until around 8.45pm, having fish and chips tonight, cooked in the oven! not shop bought!1 lol, got ironing to do tomorrow, been taking pain killers, goign to the dr monday hopefully he will refer me to the pain management clinic but don't hold our much hope they will help m much, and I've got to mention to him about the tinkling in my legs, you stay strong my friend and im always here for you, big hugs to you there
your friend
christine
x
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christine brailsford
stortfordrose1
stortfordrose1
Last activity on 21/04/2022 at 15:53
Joined in 2015
5 comments posted | 4 in the Muscles / Skeleton / Joints Forum
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forgot to say i love yankee candles! they smell so true for life! hope you are ok there today and not too much in pain toady, you take care my friend , im always here for you
christine
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christine brailsford
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@Izzyjamal
I am so happy for you Izzy. Its a ray of sunshine in your life. Mobility scooter will motivate you and help you to go and about. Some independence at last. Well done my girl. Glad your hoover is getting sorted too.
You say that you keep your Yankee candles burning. Do you burn them for long time? Hope you are keping your windows wide open when burning the candles. Inhalation of carbon and pollution of the room with invisible smoke and carbon, can cause damage to your lungs. Just be careful. i only light a candle for when I say my prayers for half an hour each morning. My husband complains bitterly as he is Asthmatic and has COPD. But I say my prayers when he is not in the room and with the windows wide ope. I even extinguish the flame, holding the candle outside the window. Even then he can smell it in the room.
Keep smiling and stay happy. Each sunset brings an end to the day and with each sunrise brings new hopw with the new dawn.
Good night my friend.
Lots of love and hugs.
Christina
Izzyjamal
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Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
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Good Evening my Dearest Friend,
I am so so so Happy 😀!
It was a long fight but I’ve got my “Car!!!”...
Yes my Friend I love Yankee Candles and I have my Window Open.
They relax me! I just like to watch the “ flickering “ of the Light if the Candle.
I am alone so I speak with my Dad several times a day and with God!!!
I had a horrendous day today!!! But Action Fraud UK finally gave me same peace... I was Victim of Identity Theft.... on TSB!!!!
Enjoy your day THE BIGGEST DAY OF THE YEAR!!!!!
Finally Sunshine ☀️
Have a Lovely Weekend my Dearest Friend 😘
Izzy 🤗🤗😊😊😘😘💕💕💫💫☀️☀️🌈🌈
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Isabel Amaro
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@Izzyjamal
Hi Izzy
I am glad you had a good day. yes, sunshine at last and it was hot too. Are you able o go out on your mobility scooter? Do you do your own shopping?
So sorry to hear that you were a victim of Identity fraud with TSB. How horrible. Is it all sorted now?
Yes, talking to Dad must give you comfort. i too talk with both my parents when I light the candle to say my prayers.
Okay my friend, have a lovely weekend and enjoy your mobility scooter. I presume you are on a ground floor.
Christina
Izzyjamal
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Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
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Good Morning my Dearest Friend,
Regarding my New Laptop it will arrive Monday or Tuesday!!!!! Can’t wait because mine died 6 months ago....
The Mobility Scooter they haven’t phone me regarding delivery. And this coming week I have 3 Medical Appointments: Dentist; Eye Hospital; and with Kim my Psychologist and then the Physiotherapists because I have a Cough Assist Machine at Home But with all honesty it never helped... I just can’t cough then often I have Chest Infection/Pneumonia-Hospital for IV ANTIBIOTICS...... All these are Medical Problems that are due to my SMA!!!!!
Well enough of it!!!! Another Beautiful Day I have my Window Open and I can see the birds that sing for me.... I live on a Ground Floor...☀️☀️☀️☀️🌞🌞🌞🌞🌸🌸🌸🌸🌹🌹🌹🌹🌈🌈🌈🌈🙃🙃🙃🙃😉😉😉😉
Weekends are just really difficult for me as I don’t have no Friends so I just stay in my Tiny Flat watching TV....and playing with Jamal.... She is so “Posh...” she loves massages...Really funny...
I can’t wait for my Mobility Scooter to go out!!!! They don’t allow me to feed the birds with appropriate food for them.....
Its difficult not to get annoyed and really “pissed off!!!” with my Stupid Neighbours and the RULES OF THIS STUPID ARROGANT SELFISH HOUSING ASSOCIATION!!!!!
Just ...... ARGGGGGG!!!!
Well have a nice Sunny Sunday 🌸🌸🌹🌹💫💫🌈🌈. I’ll leave you my contact information if you ever need to speak.... 07721605488 or 01617952919.
Love 😘😘 and Hugs 🤗🤗
Izzy.
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Isabel Amaro
stortfordrose1
stortfordrose1
Last activity on 21/04/2022 at 15:53
Joined in 2015
5 comments posted | 4 in the Muscles / Skeleton / Joints Forum
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Hello Izzy,
I hope your weekend went ok for you there, I didnt do much, did laundry and other bits, phoned my dad last night, did dinner, went to the drs today, got another fob off , it was so hot out and humid, took me around 15 mins to walk to the drs, had to stop lots of times on the way there and back took a drink of water and my inhaler, saw the dr, explained that the back dr at the hospital wanted me reffered to the pain management clinic, my dr said he didnt know where it would be but would refer me, told him about the tingling in my legs and it happens over 100 plus times per day, it was like talking to a brick wall though , told me its to do with my back and the discs and vertebras in my back, told him its embarrassing when it happens in the shops, told him i get dizzy and fall asleep at the computer or watching things on tv, said i could be aneimic or could be heart problems, he wouldnt request a blood test he told me as i had one may, yes early may now its nearly july! just felt he didnt care less about me, on the way out i saw the receptionist and asked for a nurse appointment to do my vitamin b12 jab, cannot get in with a nurse until the 3rd july! i was welling up on the way home, my partner was just going out to work as i got in, asked how it went told him waste of damm time, and i cried my eyes out told him no one cares about the pain im in, the dr asked me about what exercises i do, i told him i clean up the house, do laundry, ironing, gardening, told him i have to take pain pills before i can mow the grass, then he says be careful about lifting heavy things, he acted like i sit down on my backside all day long, makes me so mad, ive been crying most of today in fact, i nearly didnt mail some friends but knew they would worry about me if they didnt hear from me, im fed up with the drs here, thats why im reluctant to go about my knee and shoulder , which are very painfull, can only raise my arm a little way on my left arm, and if i move my knee slightly it hurts like hell, what am i supposed to do now?they seem to think you can just get on with life, says its my back because i get the tinkling in my legs then do something about it, but no wont even run blood tests, stupid idiots they are all of them, so i guess i will wait months for the pain management appointment now and god knows where it will be, my partner will just have to take me where ever it is, im worn out and feel uncared about and unloved, sorry to be a burden christine
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christine brailsford
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Izzyjamal
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Izzyjamal
Last activity on 28/11/2020 at 09:22
Joined in 2015
72 comments posted | 34 in the Muscles / Skeleton / Joints Forum
1 of their responses was helpful to members
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LMorning My Friends!
Happy Easter 🐣 to all.
Please take some time and “shout” loud here if you suffer/live with a Muscle Disorder and what do you do every day, please!
HAPPY EASTER 🐣
HUGS 🤗 AND MY LOVE 😍
Izzy.