Shout what really gets you angry!!!!

@InPain1956 I am very sorry to hear about the pain you're going through, sometimes it is a matter of fighting for what you think you need so perhaps don't stop hassling the doctors to get the xray that your deserve. Don't forget that we have a forum dedicated to living with chronic pain, you can find it by clicking HERE. There are discussions and tips all about dealing with pain.

 @stortfordrose1‍ Don't feel like a burden, that is what Carenity is for, talking to people who understand what you're going through. It isn't easy dealing with a chronic condition and you should be proud of yourself for managing despite the difficulties.

@Izzyjamal‍ I hope that your scooter comes soon and your difficulties can lessen a bit. We feel for you here at Carenity and are always wishing you the best <3 

 TO ALL MY FRIENDS!!!!!

I had a double Medical Appointment yesterday first with Kim my Psychologist that showed interest in my idea of writing a Book!!!!!

Then Physiotherapists did the horrendous scope visual of my breathing system..... not good news painful 😖 but needed!!!!

Waited 4 hours for a Paramedic to bring me back home!!!!

AND THIS IS THE “SHIT”  HEALTH SYSTEM!!!!!!!

Finally the soon to make me happy 😃 but with horrible side effects on my legs I’m all OEDEMA!!!!!!

Well my Friends I AM “PISSED OFF”!!! PLEASE APOLOGISE MY LANGUAGE.....

To be continued......

Izzy 😘😘😘😘😘

@Izzyjamal‍ 

Hi Izzy

sorry to hear about your long wait to be brought back and the pain with the scope. Hope you are feeling a bit better today. You have got the scooter to look forward to. Hope it arrives soon. What book are you going to write. That will keep your mind occupied. Good luck with it.

Hugs

Christina

Good Afternoon Christina.

Hugs 🤗 and Kisses 😘😘😘😘

Received today my new Laptop from Apple it was a Grant from Muscular Dystrophy!

Now I can start my book I want to write my story from being well and suddenly SMA.

I want to raise awareness about Neuromuscular Disorders that are Genetic!!!!

People need to understand what a Person suffers INSIDE and not ON YOUR OUTSIDE!!!!!

I have still nothing because People don’t know nothing about Genetic Disorders!!!!

Finally the Sun ☀️ came But I suffer so much because it causes oedema in my limbs!!!! My legs are on fire it’s so painful 😖!

To be continued.....

Hugs 🤗🌸💫🌈💗🌹😍🙃😉😉

Izzy.

@IzzijamalHi izzi

Hi Izzi

am so glad that you have received your new lap top. I admire you for wanting to write  a book and raise awareness of our Neruo muscular disorders . Yes, a lot of people are ignorant of the condition and do not appreciate what the sufferers are going through. Well done my girl. i wish you every success in writing the book. it will keep your mind active and give you a purpose in life. Now you are waiting for your mobility scooter so you can go out and about. Do you need oxygen 24/7. Are you oxygen dependent?

I have done a lot of work today and i am shattered. i watered the back and the front gardens, and they are big gardens. i even jet washed the patio and now absolutely shattered. That is why i am sitting down at the desk with my lap top.

Take care and get busy with your book. 

Love and hugs to you my friend.

Christina

Hello my Lovely Christina,

Im not on O2 yet. I have a Cough Assist Machine with me that I use 3 times a day. It’s to try to help me not to have so many Chest Infections.

But my Flat needs Painting and I can’t get a Grant for it. I have a Quote but still have had no joy in finding a Grant for it. I keep up with my search daily.......

Lots of Hugs 🤗 

Izzy

@Izzyjamal Hello there I know fully how you feel. I have lupus and other conditions like osteoporosis. I not only have put on loads of weight, but I have fractures in my spine which have made me bent over and added to me looking much, much older than I am, it is heartbreaking, for anyone dealing with these conditions without us having other issues, that on top affect our mental well being. My thoughts are with you and wish I could offer you words of wisdom to make you feel good about yourself. But I have yet to find it during all my years of having these health conditions.

@Izzyjamal‍ 

Hi Izzi

I understand about the cough assist machine. yes, it would certainly help to prevent mucous building up and cause chest infection. Do keep fighting for the grant to have your flat painted. Are you on Pension Credit? it would help accelerate if you are.

Wish you good luck my friend. have you made a start on writing your book yet? No news of your mobility scooter yet?

take care my friend. lots of hugs

Christina

HELLO MY LOVELY CHRISTINA,

Will keep fighting don’t worry!

Waiting for the Mobility Scooter yet!!! My Orange Posh Coupe!!!!

Yes already started writing the book. Need help revision and a Publisher.....

Need to Google for these!!!!

Have a peaceful night My Dear. 

Take care of yourself.

Hugs 🤗🤗🤗🤗🤗

Izzy 😘😘😘😘😘

@Izzijamal

Hi Isabel

I am so happy that you have started writing your book. Good luck with finding a publisher. You are an inspiration to all. Wish you every success. Hope your mobility scooter arrives soon.

Keep smiling and take care of yourself.

Love and hugs

Christina