Shout what really gets you angry!!!!

@Cervicaldystonia I hate the inactivity. How do you keep weight off?

My spascity is so bad I have so much trouble even getting out of bed. I was very surprised that it wasn’t listed as a top symptom!  I’m thankful that perhaps most people don’t suffer as badly as this. 

Good Morning Lovely Friend, Cervical dystopia

I think will all honesty that everyone suffers. I was in Hospital this Night due to severe pain in my Right Side. It is a trapped nerve!!!! No MRI done . Had another raw screaming my head off due to the fact that that the”trick with Morphine!!!” showed up!!!

Im on the edge with this Pain, so I did a appalling scene in the Hospital.....

Came back home because I self discharged myself!!!!!!!

Here I am in agony but thinking about Beautiful Things.......

It is not easy!!!!!

Hugs my Lovely Friend,

Izzy 🌈🌈🌈🌈🌈🌈

@Izzyjamal‍ 

Hi my friend

So very sorry to hear about your pain. how did you manage to get back home. Did Paramedics bring you back? How did you control your pain? Are you still in pain. Do you have a physiotherapist to help you with the exercise to untrap your nerve? Can you get down to the floor or exercise on bed? 
I pray that you find some relief and feel better soon.

Love and hugs. 

Christina

Good Morning My Lovely Friend.

 Here I am in pain! No medication can’t have the input needed for my condition!

The Idiot of the Dr did not want to do me a MRI to the full spine!!!! Oh my Friend another “Theatre “!!!! In A£E!!!!

Its only my right side that hurts so much!!!

Just taking my normal medication. Have an appointment with my GP on Tuesday.

She will request the MRI!!! Idiot Consultant that had to hear me call him INCOMPETENT and same more..... Well you know me when I get started by now!!!!!

Then it was with the Nurses that wanted to “calm me down” with IM “God knows what!!!!!” Oh my God help me!!!! I thought it’s today that I slap one of them!!!! Honestly PATRONISING ME!!!! F<€%#€**€O><>><$!!!!

Here I am with Agonising Pain on my right side from my right side Lumbar Region until my knee!!! Can’t trust  this leg!!!!! I’m walking or “dragging “ me on the left side here in the Flat!!!! Thursday I’m back in my normal Hospital!!!!

But hell NO LETS SMILE 😊!!!!!

In my Hospital me an A&E will end really bad tryst me!!! They don’t have a clue about SMA....

Enough of this Rubbish!!!

I have started my book.... My Mobility Scooter will be with me in about 2 weeks my Orange Lamborghini!!!!!!

RESPECT NOW!!!! I wish I could have help from MCC!!!!!!

Enough of me! How are you? Hope in your best “sexy” behaviour.....

Have a nice weekend my Lovely Friend!

Hugs 🤗 and Kisses 😘 

Izzy 🌈

@Izzyjamal‍ 

Hi Izzy

I am so sorry for what you are going through, but i am afraid, losing your temper, bad mouthing, screaming and shouting will get you know where. You have to put your trust in the doctors. They know what they are doing and if they think that an MRI is warranted, they will surely order one. There is a risk of radiation and if you have too many MRI scans, you become susceptible to Radiation Cancer. I know what extreme pain can do to your mental state, so please do be calm and let the doctors worry about you. I am sorry if I sound harsh. i don't mean to be.

I am glad that you have started on your book. Something to keep you occupied. You have something to look forward too, and that's your mobility scooter in 2 weeks time. try and relax my friend, do some meditation and relaxation. Play with your cat Jamal, that will calm you down too. Let me know what your GP says on Tuesday.

Wishing you calm and peace

Your friend

Christina

Good Morning Christina,

Im really sorry to say that I disagree with you about my MRI Scan that I should have done!!!!

And no I will not SHUT UP!!!! That’s way we have this Health System!!!!

The Hospital that I go is the one nearer to me!!!! The Hospital were I go for my Medical Appointments is not the same!!!

So here I am in agonising Pain crawling around the Flat is ok????

Sorry but I WILL NOT SHUT UP!!!!

Sorry but I guess that we agree to disagree!!!!

Hugs 🤗

@Izzyjamal‍ 

Hi Izzy

You do what ever you think best for you to do to get the attention you require from the medics. You alone know your body and your pain. So if you need to shout, you do that and i hope that you get heard and get the actual diagnosis, so you can can get the right treatment.

Good luck my friend

Every time I go to my surgery I see a different GP who diagnoses something totally different for the same symptoms. It's varied from gallstones (seen with ultrasound), scoliosis (curvature isn't new, referred to a specialist), aponea (I think unlikely, other causes of insomnia but I'll play along and see the specialist), hypermobility syndrome (tell me something I don't know, just put it on my medical record - no? here we go again). pancreatitis (proven wrong with a blood test). osteoporosis (proven wrong with DEXA test) and 'just need to see a physio' (phone consultation, my reaction wasn't positive, saw me in surgery and diagnosed two of the above). 

That's just the last 6 months...

Historic most wrong diagnoses include:

- influenza: turned out to be meningitis 
- costochondritis: turned out to be peritonitis 
- 'can walk it off, need to be more active' - torn hamstring and quads

Then they dislike when challenged. I know my own body better than they do.

@marcusbm‍ 

That sounds horrific. Sounds as though you need to change the surgery and go to the completely new doctor. I totally agree with you. You know your own body better than any one else and the doctors need to listen to their patients, do the diagnostic tests first before confirming what is wrong with you.

@nineteen_gale I wish I could, however there's only one surgery in the village and I'm not mobile enough to travel