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Shout what really gets you angry!!!!

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Izzyjamal

20/04/2019 at 09:37

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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LMorning My Friends!

Happy Easter 🐣 to all.

Please take some time and “shout” loud here if you suffer/live with a Muscle Disorder and what do you do every day, please!

HAPPY EASTER 🐣

HUGS 🤗 AND MY LOVE 😍

Izzy.

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Cervicaldystonia

14/05/2019 at 17:43

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 10 in the Muscles / Skeleton / Joints Forum

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@Izzyjamal Welldone on trying to keep independent but you also deserve lots of help!

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-14 17:43:32

Izzyjamal

14/05/2019 at 17:54

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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@Cervicaldystonia I know. But sometimes I don’t have the strength to fight against A WALL!

But I do fight and I’ll do it everyday that I can. And I get angry and I’m rude.... Nothing seems to touch MCC!

Hugs 🤗🤗🤗🤗

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-14 17:54:36

Unregistered member

14/05/2019 at 18:30

Hi IzzyI am afraid you can not run away from what you have got. Hard as it may sound, its here to stay with you for ever. May be if you accept it, and learn to cope with it by various methods, you might feel different. How ever you must continue to fight for it, as you deserve all the help you can get. You paid your national insurance during your 30 years of nursing service, and you deserve to get something back. Are you in UK? If you are, have you been in contact with The Royal College of Nursing? They can go to the media and shout loud for you to get help. Other option is go to the media via news paper, Instagram, On Victoria Derby show on TV etc. If your MP did nothing for you, all the more reason for you to leak your story to the media. I was a very fit active healthy woman until my back went 6 years ago, and had one after another, 5 Spinal surgeries in all which has rendered me disabled and have to walk with 2 crutches and am unable to stand you even for a minute without holding on the furniture or wall. But I accepted my condition. It is what it is, I could either mope round and get wheelchair bound and accept my disability, and and do nothing, or to make the most of what is available to me and looked for the ways of improving my life by life style changes. I chose the latter. I started going swimming and water aerobics, to the gym to exercise my muscles so I can cope with my disability better. I know you are in a very different circumstances. SMA is a degenerative illness and its not at all easy. But my friend, be positive, try your hardest to say, "I can do it, set your mind to it, how ever slow you get to it, doesn't matter, as long, as you achieve what ever you are trying to do. You will feel proud of your self for doing it. Just don't give up seeking help from the NHS. Its your right. Involve Ombudsman. I know you can't go out and about meeting every one, but use the phone and email. Just don't give up.Sorry I have been babbling on, but I so strongly feel that you should be able to get help and trying to give you the encouragement to seek it.All the best to you my friend. Let me know if you succeed in the endChristina

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-14 18:30:19

Unregistered member

20/05/2019 at 18:11

@Izzyjamal‍

Hi Izzy. I thought of you 3 days ago when I came across some Ti Chi exercises and a sale of DVD. Read a lot of reviews and all good ones. I decided to give it a try, so I have ordered the DVD. People swear by doing those exercises has changed their life for the better. It is supposed to help you relax, assist flexibility and agility, help you sleep better and much more. I am going to give it a try when I get it. I wonder if you know anything about Ti Chi and would like to give it a go. Its just a thought.

Hope you are managing to the best of your ability.

Good luck

Christina

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-20 18:11:23

Izzyjamal

20/05/2019 at 18:15

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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Good Afternoon Christina

No I do not know nothing about it to be honest.

Let me know how you do and when you have time contact me as I’m willing to try anything that can help me.

Thank You for thinking about me.

Hugs

izzy.

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-20 18:15:24

Cervicaldystonia

21/05/2019 at 16:21

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 10 in the Muscles / Skeleton / Joints Forum

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@nineteen_gale @Izzyjamal I have heard great things about tai chi too. I might look up some free videos on youtube before I inves tin purchasing but anything is worth a try! Thank you for sharing

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-21 16:21:59

Unregistered member

21/05/2019 at 16:47

@IzzyjamalWhy didn't I think of watching some videos on U tube before spending £24 in DVD? our's is a very good idea. Yes, do watch some and try it out that way. Time is my biggest enemy. Its so hard to fit everything in, there are not enough hours in a day to do so. Its an hour long DVD. I will have to put some time aside and do the exercises. Health comes first. I will let you know when it arrives and I have tried it, and you let me know what you think when you watch the U tube video. I have ordered Tai Chi Sitting, for seniors. There is one available for Standing Tai Chi. I would be unable to do the standing one I guess.Good luck

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-21 16:47:46

Izzyjamal

22/05/2019 at 11:57

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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Good Morning Lovely 😊 Ladies

I have started to read and see videos of Tai Chi on YouTube. It’s brilliant. But I’ve got so much that I can’t do.

Nevertheless I’m reading about Yoga Pilates Chakra Meditation and if I can’t do nothing it’s works like hope on the end of the Tunnel!!!!

Have a very Good Day my Friends!

Izzy. 😘

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-22 11:57:40

Unregistered member

23/05/2019 at 18:26

@Izzyjamal‍

Hi Izzy, you don't have to try every thing at once. There will be a lot you might not be able to do at first. Just do what ever little you can do without stretching yourself too far to hurt yourself. You will be amazed if you persevere, over a period of time what you thought was impossible, becomes possible, slowly as it may be, but you will benefit from what ever little you can do. Just regular deep breathing with relaxation and meditation calms you a lot and makes you feel better. Every little helps. I haven't got round to looking at any u tube videos yet.

Good luck my friend.

Christina

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-23 18:26:29

Izzyjamal

23/05/2019 at 18:31

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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Hi Lovely Christina

I haven’t had time to dedicate myself to it!

Its Medical Appointments that are far to many: Dentist, Eye Hospital, MRI Scans( Brain Tumour!)! I’m just tired of everything!!!

Sorry but very sad today!!

Hugs 🤗

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-23 18:31:09

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