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Shout what really gets you angry!!!!

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Izzyjamal

20/04/2019 at 09:37

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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LMorning My Friends!

Happy Easter 🐣 to all.

Please take some time and “shout” loud here if you suffer/live with a Muscle Disorder and what do you do every day, please!

HAPPY EASTER 🐣

HUGS 🤗 AND MY LOVE 😍

Izzy.

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Cervicaldystonia

03/05/2019 at 09:36

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 10 in the Muscles / Skeleton / Joints Forum

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@Izzyjamal Hello,

Well it is great that you have confidence in your medical team! do you have any family that can help you?

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-03 09:36:14

Izzyjamal

03/05/2019 at 10:17

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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MORNING SWEETHEART!!

My Family Mum and Sister live in Portugal and THEY STOPPED ANY CONTACT WITH ME 2 YEARS AGO!!!

I am alone with only ONE FRIEND ONLY AND MY BEAUTIFUL CAT JAMAL!!!!

Family????? Disgusting behaviour....

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-03 10:17:32

Cervicaldystonia

09/05/2019 at 15:59

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 10 in the Muscles / Skeleton / Joints Forum

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@Izzyjamal That is terrible about your family, so they don't know how sick you are? Have you tried contacting them?

I hope you're having a god day today!

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-09 15:59:18

Izzyjamal

09/05/2019 at 16:25

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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🤗🤗🤗Good Afternoon Lovely Friend,

I am feeling really “crap”, I have another Chest Infection. It was really warm here and then it went freezing and windy and rain....

Yes my Family know!! But they were after my Dads money... But no problem as “the one that laughs last laughs better...”

And how are you?

Hugs 🤗🤗🤗

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-09 16:25:31

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13/05/2019 at 16:50

@Izzyjamal‍

Do you have any care system set in,like carers coming 4 times a day to help you with getting out of bed, your medications, help with lunches put you to bed at night? Are you in a house with stairs or a bungalow or apartment? Sounds like you need a lot of help and do not have much of it. Are you registered with social services and district nurses? I hope you have all of this in place. You say you have a very good medical team, so I assume that they have arranged all this for you. Very sorry that your family has broken ties with you. At a time like this you need your family more than ever. Do you believe in Karma? What goes round, comes round. May the good Lord look up on you kindly.

God bless.

Christina

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 16:50:50

Izzyjamal

13/05/2019 at 17:02

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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@nineteen_gale Good Afternoon Christina.

I am all alone!!! Manchester City Council left me down My Social Worker doesn’t even bother to answer the phone.

I do everything by myself clean the Flat in my own time! Can’t use the Stove as I shake (symptoms) so I failed the assessment. I use a Special Kettle and Microwave!!!!

My Medical Team is up side down with MCC and my SW!!!! The best is that I will not ever be affected on my neck above!!! I survive thanks to my knowledge as I was a Nurse for 30 years!!!

It is despicable what I have to go!!! But I fight!!!! I already lost my patience with MCC and SW and was quite rude!!! Not bothered!!!

But the sun is shining so that’s what I need -small things!!!!

But I WILL NOT GIVE UP UNTIL I HAVE EVERYTHING THAT I NEED!!!!!

HUGS 🤗

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 17:02:01

Unregistered member

13/05/2019 at 17:12

@Izzyjamal

That is a great shame. I am an experienced nurse of 57 years, and am disgusted how the Manchester council have let you down. Can our GP not organize any help for you.? Usually they do arrange for District nurses to call on you, but it seems you are more in need of social services rather than the District nurses. Would you consider going in to a council run Retirement Residential independent live in, where you can purchase a care package and there are carers on site ? There are quite a few about. There are some in Stoke on Trent.

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 17:12:04

Cervicaldystonia

13/05/2019 at 17:43

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Cervicaldystonia

Last activity on 13/12/2020 at 12:40

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34 comments posted | 10 in the Muscles / Skeleton / Joints Forum

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@nineteen_gale @Izzyjamal That is a really good idea, it does seem like the medical system is thoroughly letting you down. Keep at your doctors and social services, it isn't right for someone to be treated like this, especially after dedicating 30 years of your life to nursing!

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 17:43:17

Izzyjamal

13/05/2019 at 19:40

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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@Cervicaldystonia Thank You 😊

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 19:40:39

Izzyjamal

13/05/2019 at 19:47

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Izzyjamal

Last activity on 28/11/2020 at 09:22

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72 comments posted | 34 in the Muscles / Skeleton / Joints Forum

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@nineteen_gale Hi,

The problem is that deep down I do not accept my SMA!!!!

I want to be independent as much as I can!!!

It takes me all 2 days to clean my 1 tiny bedroom flat!!!!!

I AN SO ANGRY WITH THE BRITISH HEALTH CARE!!! AND YES I AM IN WAR WITH THEM!!!!

THEY WILL HERE ME EVERY DAY IF NEEDED I DO NOT CARE I ADMIT THAT I’M VERY RUDE!!!!!

I EVEN TRIED MY MP ..... NOTHING!!!!

But Thank You 😊 so much for the advice and support!

Hugs 🤗

Izzy 😘

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Isabel Amaro

Shout what really gets you angry!!!! https://www.carenity.co.uk/forum/muscles-skeleton-joints/living-with-diseases-affecting-muscles-joints/shout-what-really-gets-you-angry-2802 2019-05-13 19:47:02

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