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Ehlers-Danlos syndrome Forum

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  •  134 discussions

Medical fact sheet

Ehlers-Danlos syndrome

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Living with a rare disease
Living with diseases affecting muscles, joints and-or skeleton
Living with skin conditions

 Living with diseases affecting muscles, joints and-or skeleton

Pregablin

avatar lesmal

avatar Sunshine5

avatar sivorn

 Living with diseases affecting muscles, joints and-or skeleton

Osteoarthritis of the knee

avatar Courtney_J

avatar Sunshine5

avatar juliamac

 Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar CerysNorth

avatar Poppyh91

avatar Courtlouiselee

 Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Knee replacement

avatar Moonstone1

avatar Jennyh44

avatar aglowlady

 Living with diseases affecting muscles, joints and-or skeleton

Total hip replacement: Can you share any advice?

avatar VICKICOFFEY

avatar dantheman

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Can't Apply for PIP (DLA) Must Be Attendance Allowance Because I'm too old. Anyone Applied for Attendance Allowance in UK

avatar Pagma1

avatar Dodger99

avatar ladybear1

 Living with diseases affecting muscles, joints and-or skeleton

Having trouble getting my knee operation scheduled because of COVID-19

avatar Nanaclaire

avatar Tony65

avatar Courtney_J

 Living with skin conditions

Burning feeling on my neck and face, especially in winter - Have you been through this?

avatar Tontnella

avatar Courtney_J

 Living with skin conditions

Are there any alternatives to steroid creams to treat eczema flare-ups?

avatar Mishb94

avatar DougieMcCullough

avatar Courtney_J

 Living with skin conditions

Red, sore inflamed rashes on abdomen - Has anyone else had this?

avatar AngelaH

avatar ItCHY!!!***

 Living with diseases affecting muscles, joints and-or skeleton

Leg swelling

avatar Smudger

 Living with skin conditions

Have you tried Methotrexate for atopic dermatitis?

avatar DeanH1988

avatar jaybelevee

avatar Courtney_J

 Living with skin conditions

My seborrheic eczema is affecting my mental health

avatar Johanna

avatar Thedoc83

avatar Courtney_J

 Living with skin conditions

Topical steroid cream for eyelids and eye health: Does it work?

avatar Elizabeth12

avatar niki10

avatar Courtney_J

 Living with skin conditions

Flare ups making it difficult to move and impacting my mental health

avatar Johanna

avatar Courtney_J

 Living with skin conditions

Welcome to the skin conditions group! Come say "Hello"!

avatar Rainbow195757

avatar DeanH1988

avatar Carl_B

 Living with skin conditions

Eczema flare-up on forehead, eyes and hands: Any advice?

avatar amygray

avatar Cazz2008

avatar Dancingqueen84

 Living with skin conditions

Baby and toddler eczema: Any advice?

avatar DeanH1988

avatar Courtney_J

avatar Jojoseph

 Living with skin conditions

How do you control your flare ups?

avatar Rina19

avatar Carl_B

avatar Courtney_J

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Articles to discover...

Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure.

14/08/2024 | Testimonial

Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure."

Fibromyalgia: “I have to stay active!”

06/10/2021 | Testimonial

Fibromyalgia: “I have to stay active!”

Photo testimonial: if Ehlers-Danlos could talk

17/04/2019 | Testimonial

Photo testimonial: if Ehlers-Danlos could talk

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

06/02/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

07/05/2018 | Advice

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

Breast cancer and mastectomy: My story

26/10/2018 | Testimonial

Breast cancer and mastectomy: My story

Aspartame and its effects on our health

19/04/2025 | Nutrition

Aspartame and its effects on our health

Medications and breastfeeding: which ones are safe to take?

12/04/2025 | Advice

Medications and breastfeeding: which ones are safe to take?