The ambassadors

The Carenity Team of Ambassadors consists of members with various chronic conditions who have shown kindness and willingness to help others with a piece of advice or a word of support, and who are there to help us make Carenity forum even more useful.

Our Ambassadors have been Carenity members for a while now and they know perfectly well how to post a comment, create a discussion or send a message, and will be able to guide you around the site if you get lost 😉

So don't be afraid to reach out to them.

However, don't forget that they are patients, just like you, so all the questions that require medical opinion should be addressed to healthcare professionals.

Yank34

Chronic pain,Muscles / Skeleton / Joints,Multiple sclerosis,Spasticity

Although only formally diagnosed with MS in late 2013, believe my MS initially presented as trigeminal neuralgia when I was about 27 yrs old (approx. 1978) but because I believe I had RRMS (Relapsing Remitting) the various symptoms, intermittently experienced over the years, never thought there was any "connection". It really only began to became problematic in about 2006 when I started experiencing extended periods of time (months) with debilitating fatigue, ever increasing "accidents" I.e. falling down stairs, slipping, memory problems, muscle cramping etc but attributed these down to "doing too much, working too hard", getting older......". Although I know believe I have SPMS (Secondary Progressive) - have been experiencing daily symptoms for approx last 18 months but feel so fortunate and grateful independent although with various limitations. Wish I didn't have this but know things could always be worse. Happy to meet and support others with this.

I’ve only just TODAY (12/08/22) noticed that I may NOT have previously completed this form? Although I have NO idea when I may have written the above - have NOW had MS for 44+ years. I’ve had NO 24/7 period of time without MS symptoms but conversely still believe I continue having extended “flares”, lasting between 12-20 months which I often only recognise sometime after they actually started and likewise sometime after they ‘resolve’.

mikebpool

COPD,Bladder cancer

mr chipps

Prostate cancer,Ulcerative colitis,Seborrhoeic dermatitis,AMD,Coronary heart disease,Deafness,Spondylosis

i am living with several health problems, but i do not let them take over my life. i have several hobbies, such as singing in choirs, playing the piano, writing poetry and voluntary work, for an N.H.S trust mental health trust i use it to help me improve my quality of life. i love my life and do what i can to help others in need. i recently bought a defibrilater for my local community. in memory of my angel wife in heaven

robjmckinney

Diabetes (Type 2),Disc hernia,Head and neck Cancer

I am a diabetic 2 sufferer who has just survived neck cancer with three prolapsed discs.

lacemaker

Osteoarthritis,Thyroid dysfunction,Anal fistula,Rheumatoid arthritis,Radiation proctitis,Short bowel syndrome,Secondary Lymphedema,Lichen planus,Lymphodema

Mrs E Larkin

Epilepsy,Celiac disease,Sjögren syndrome,Spinal stenosis

I am Eileen with Epilepsy and Coeliac Disease wishing to share with others of similar! In particular post operative Epilepsy! I am from Teesside but surgery was performed at Queens Square London 3 years ago.

Diagnosed Sjögren's Syndrome 9 months ago! Struggling with symptoms would appreciate recent coping tips!

JazzyC

Sleep apnea,Arthritis,Asthma,Diabetes (Type 2),Celiac disease,Rheumatoid arthritis

Hi , I have a number of health problems but I refuse to let them beat me.I want to talk to others who are in a similar boat.

I have been an asthmatic all my life and as a teenager became very complacent as long as I had my blue ventalin inhaler I was fine. Only I wasn't and ended up studying for my O levels in hospital.

Roll on about 30 years and the same scenario played out, it was only thanks to the rapid and sensible intervention of my then 9 year old son that I survived. This time the damage, so to speak, seemed permenant, regular visits to the hospital, for quite a while reliant on a wheelchair before being put on a nebuliser at home 10 doses a day plus high doses of predisinole every day That in itself caused major complications, large weight gain, type 2 diabetes insulin dependent with problems, a shot digestive system etc. I lost all my self confidence and became more or less house bound.

Then a miracle, well as far as I was concerned happened. I was transferred to Southampton hospital and started a new treatment called xolair. My husband walked out a couple of months into the treatment, my stress levels went down and as my son said it was a light was switched on to a new life . I have lost weight, have regained much of my self confidence, trying new things all the time and most importantly am off the predisinole completely. My campaign now is to help fellow asthmatics regain control. I have just come back from a conference in London where I spoke on living with asthma. It was brilliant and a lot of the delegates who were professionals from all over the world, came up to me to say thank you and how useful my insight was. I have also started my own online support group Dorset Asthma and COPD support group on Facebook. Eventually I hope to form a face to face support group when fellow sufferers can get together to discuss problems

Pippadog

Diabetes (Type 2),Obesity,Rheumatoid arthritis,Overactive bladder syndrome

Hi I am Brenda I have Rheumatoid Athritis

RobertLondon

COPD

I am a single man living in a cottage in rural Ireland with only a large G.S. for company. As I get older I am scared stiff when the time comes I will not be able to cope, as I have very little human contact If I turn up my toes I will probably be eaten by the mooch. :-)

lesmal

Aneurysm,Osteoarthritis,Chronic pain,Epilepsy,Chronic gastritis,Hyperlipidemia,Pulmonary arterial hypertension,Hypothyroidism,Chronic kidney disease,Osteopenia,Osteoporosis,Pulmonary Hypertension

I have had epilepsy for 51 years and will not give up hope for a cure. I advocate, educate and do voluntary admin work for people with/affected by epilepsy and cancer, Marie Curie UK.

Raythebaker

Rheumatoid arthritis

sophiesmum

Sleep apnea,Asthma,Depression,Eczema,Arterial hypertension,Polycystic ovary syndrome

Hi everyone,

I'm TJ. I'm 41 and I live in Warrington, Cheshire with my fiance of just over 6 years and my mum and her pomchi puppy.

I have asthma, eczema, PCOS. I am looking to make new friends.

I also have postnatal depression, which I've had for around 16 years, but I wasn't diagnosed with it until after I'd had my daughter.

my profile picture is of my late dad.