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Ehlers-Danlos syndrome Forum

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  •  133 discussions

Medical fact sheet

Ehlers-Danlos syndrome

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Living with a rare disease
Living with diseases affecting muscles, joints and-or skeleton
Living with skin conditions

 Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar LifeDelineator

avatar Becķy-3

avatar Trvlr1

 Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

 Living with diseases affecting muscles, joints and-or skeleton

Life after spinal sugery

avatar Somya.P

 Living with diseases affecting muscles, joints and-or skeleton

Do you have cramp fasciculation syndrome?

avatar Somya.P

 Living with diseases affecting muscles, joints and-or skeleton

Pip for cramp fascination syndrome

avatar Gally63

 Living with diseases affecting muscles, joints and-or skeleton

Life after a joint replacement: Share your experiences and advice!

avatar ladybear1

avatar velocette

avatar Mrs E Larkin

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask! 

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 Living with diseases affecting muscles, joints and-or skeleton

Shout what really gets you angry!!!!

avatar velocette

avatar Courtney_J

avatar marcusbm

 Living with diseases affecting muscles, joints and-or skeleton

CBD oil for arthritis

avatar Sonicbear

avatar josie42

avatar catwomanno.1

 Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Heridana

avatar JimboWombo

avatar lawissa

 Living with diseases affecting muscles, joints and-or skeleton

Spinal stenosis

avatar Sonicbear

avatar Polina.K

 Living with diseases affecting muscles, joints and-or skeleton

Curvature of the spine- Back problems

avatar Cammy9

avatar Hippymum

avatar Faithkitty

 Living with skin conditions

My skin is worse in the winter-is yours?

avatar Glencairn

avatar Becķy-3

avatar Rahul.R

 Living with diseases affecting muscles, joints and-or skeleton

Duloxetine for fibromyalgia

avatar Jhiggy64

avatar LizziB

 Living with skin conditions

Keeping your mental health in check

avatar Rahul.R

avatar Becķy-3

 Living with diseases affecting muscles, joints and-or skeleton

Suicide

avatar Tigger.co.uk

avatar marcusbm

avatar LizziB

 Living with skin conditions

Recommendations for urticaria treatment?

avatar Berthe.N

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

 Living with diseases affecting muscles, joints and-or skeleton

Osteoarthritis and pain

avatar Sickofpain

avatar lynningham

avatar Courtney_J

 Living with skin conditions

Eczema - How to cope with scratching?

avatar george43

avatar Becķy-3

avatar Karlsmum

 Living with diseases affecting muscles, joints and-or skeleton

Pregablin

avatar lesmal

avatar Sunshine5

avatar sivorn

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Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure.

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Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure."

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Fibromyalgia: “I have to stay active!”

Photo testimonial: if Ehlers-Danlos could talk

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Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

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Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

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Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

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