Patients Sleep apnea

What is it like living with sleep apnoea?

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Edited on 06/06/2016 at 15:31

I suffer from this have a cap machine. It's awful in winter cold air blowing up your nose won't use it then. I also have osteoarthritis in neck so it's very painful to wear anyway. Anybody got any suggestions thks

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Shazdun

02/06/2016 at 20:36

Shazdun

Last activity on 02/06/2016 at 20:11

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My hubby has just been diagnosed with sleep apnoea , also has panic attacks , we we are waiting for the cap machine

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Sharon dunraven

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2016-06-02 20:36:24

Groovychick

05/06/2016 at 17:41

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Groovychick

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I have Two sleep disorders, Restless Legs/ Periodtic Limb movement disorder & Insommia.

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A Pulford

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2016-06-05 17:41:55

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06/06/2016 at 15:31

I hate the cap machine feel clostra phobic. Can't wear it due to arthritis in neck so constantly tired

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2016-06-06 15:31:12

Thingybobby

25/09/2017 at 12:26

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I've had apnoea for 6/7 years and whilst I've a reasonably good record of use, it's highly problematic.I'm plagued by a hacking cough and excess phlegm, which seems to pour from my sinuses, as soon as I lay down.I've tried all manner of additives to the water reservoir, which only seem to provide short term relief.

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-09-25 12:26:02

robjmckinney

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03/10/2017 at 11:12

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My wife has her CAP machine for 5 years now, took some time to find the right mask. Just recently they ran out of the right mask at Papworth and she has had to try several new versions which are not so good and leak.

She had a faulty one that leaked into her eye leading to causing a torn cornea leading to inflammation at the rear of the eye almost loosing her sight. So she has been keen to get a good fitting one, another trip to Papworth is on the cards.

So a good warning to all who use the CAP machine as well as being very painful at the time, get a good fitting mask.

Take care also to make sure you take your machine into hospital on any stay. Although they have them on wards but oxygen can't be attached to your own. The consultant insisted my wife did not have sleep apnea so removed the machine and reduced the oxygen. She ended up in hours in ICU for two weeks and was touch and go for days whether she would live. The apologies from the consultant in the end would have been worthless if she had died. So be aware the hospital Doctors are limited to their speciality and do make mistakes.

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robjmckinney

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-10-03 11:12:55

johnny66

09/10/2017 at 13:37

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Try a minibar instead.

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-10-09 13:37:04

robjmckinney

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10/10/2017 at 11:05

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She has tried most versions and prefers the full face mask, they fill our draws at home.

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robjmckinney

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-10-10 11:05:51

Unregistered member

27/10/2017 at 04:02

@Groovychick just started having this problem last six months also cramp which can wake me if managed to sleep. Can cope with the cramp but it's the lack of sleep/restless legs that annoys me most. Tried lots of different ideas but find getting up and doing craft work till eyes are droopy then try back to bed!!!!!

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-10-27 04:02:52

Unregistered member

24/11/2017 at 00:45

Question. What is a cap machine??

I suffer from Osteoarthritis in my neck and upper back as well as AS Arthritis in my whole body. I started using the CPAP machine, CPAP stands for Continuous Positive Airway Pressure, back in 2012. Yes somewhat uncomfortable at first but I soon got used to wearing it, you just have to persevere with it if you want to sleep. STICK WITH IT my friend.

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-11-24 00:45:04

gerriplayer

10/12/2017 at 00:54

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Dx'd with sleep apnea, wore Cpap for 2 weeks and got a sinus infection, stopped for 2 weeks then started CPAP again, got another infection. Have tried lowering humidity and temperatures to no avail. Have daily nasal congestion( like having a cold 24/7) CPAP company is not helping me. Any advice, if I do not wear it at least 4 hrs a day my insurance company will not pay for it any longer

What is it like living with sleep apnoea? https://www.carenity.co.uk/forum/sleep-apnea/living-with-sleep-apnea/sleep-apnea-958 2017-12-10 00:54:49

What is it like living with sleep apnoea?

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