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Prostate cancer and work
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toddy1234
toddy1234
Last activity on 10/04/2021 at 20:35
Joined in 2016
10 comments posted | 5 in the Living with prostate cancer group
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hi everyone,,, was diagnosed in 2009 had radiotherapy and 3 monthly injections of Casodex then i came off it after 9 months as made me feel like crap,,,,,,,,,,,,,waas on bicomate for a while have came off it had a full body scan last November and a more detailed one not long after going to see doctor in UCL London next Tuesday to see results i have been a bit cavalier in not having treatment 3 times having turned down freezing ,,, and prostate samples being taken was 109 in 2009 after which went down to 00.1 last one was 4,.4 ........... good luck everyone,,, bob
carbuilder
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carbuilder
Last activity on 28/07/2021 at 13:23
Joined in 2017
22 comments posted | 15 in the Living with prostate cancer group
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had radical prosatectomy mid December 2016 just returned to work end of Feb 2017 work has been great about it as they had an employee have the same happen to him some years ago. Only difficulty I have had is financial with my company sick scheme only lasting one month the rest of the time have been on stat sick pay which dropped my income to about 1/3. Any way back to the grind now so fingers crossed can get my debts paid off in April.
Just had appointment at hospital for a Penile Pump, ok it works but not exactly sexy or allow for any spontaneity lol
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Geoff H
toddy1234
toddy1234
Last activity on 10/04/2021 at 20:35
Joined in 2016
10 comments posted | 5 in the Living with prostate cancer group
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never tried that but ill have a go , update my blood count is 8.1 so back on casco dex told by oncologist that big c not spread outside prostrate going to have a local anaestheticc to have 4 samples taken from prostrate which has half of the big c apparently takes 5 minutes as opposed to a general
carbuilder
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carbuilder
Last activity on 28/07/2021 at 13:23
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22 comments posted | 15 in the Living with prostate cancer group
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I never even contemplated anything other than removal as what I have heard going the radiotherapy/chemo route would have meant longer off work and more disruption as it is only been off for 10 weeks and that's it done with
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Geoff H
carbuilder
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carbuilder
Last activity on 28/07/2021 at 13:23
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22 comments posted | 15 in the Living with prostate cancer group
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Just been told my blood count is down to 0.1 so looking very promising.
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Geoff H
toddy1234
toddy1234
Last activity on 10/04/2021 at 20:35
Joined in 2016
10 comments posted | 5 in the Living with prostate cancer group
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thats good then.....
carbuilder
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carbuilder
Last activity on 28/07/2021 at 13:23
Joined in 2017
22 comments posted | 15 in the Living with prostate cancer group
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It's good but to be honest I have lost a lot when I lost my sex life as nothing is happening on that front been told ED tablets are not doing anything so seeing a specialist next month but the options certainly don't sound appealing, certainly the injection scenario is a total turn off so not sure what else they can offer. Incontinence seems to be increasing slightly after getting down to one pad per 24 hours sometimes need a second but am sure the extra mobility and more stressful life may be causing that. Sometimes wonder what life would have been like had I opted just to let the cancer run it's course and made the most of what time I had left. I'm going to live longer but the quality of life is pretty mediocre at the moment.
Has anyone else had these thoughts or feelings or am I just being stupid, who doesn't want to live longer right?
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Geoff H
toddy1234
toddy1234
Last activity on 10/04/2021 at 20:35
Joined in 2016
10 comments posted | 5 in the Living with prostate cancer group
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update blood count - o had a pet scan not spread outside everything fine so ill keep on with casodex again been off casiodex for a while so my way of thinking is give a small rest from it so if it starts to get out itl stop it not let the c get used to casodex ? any thoughts anyone ....................................
JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 21 in the Living with prostate cancer group
6 of their responses were helpful to members
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@toddy1234 Hi toddy,
How are things now with you?
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Josephine, Community Manager
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Margarita_k
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Margarita_k
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Last activity on 07/10/2020 at 11:39
Joined in 2016
1,195 comments posted | 20 in the Living with prostate cancer group
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Here are some questions for those who continue working full time while being treated for prostate cancer.
Was your employee understanding towards your health issues? Do you get all the necessary leaves for doctor appointments, hospital visits, etc? Did your employee adjust your working schedule and reviewed your responsabilities?
Some side effects of treatments can also affect your working day like urinary problems and tiredness for example. How do you cope with that?
Thanks for sharing your stories!