MS and the Coronavirus - How are you handling the pandemic?

1,718 views
49 times supported
64 comments

Courtney_J

Community manager

13/03/2020 at 12:36

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Living with multiple sclerosis group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello dear members,

While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.

Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?

Take care,

Courtney

All comments

Go to the last comment

LindaBlacker

11/02/2021 at 19:34

Good advisor

LindaBlacker

Last activity on 12/05/2024 at 21:36

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

I also have secondary ms. In total I've had ms going on for forty one yrs now. I broke my hip june last yr 2020. I walked next day with a Zimmer frame. The pain was indescribable. I pushed through the pain. At least in walking with a stick. Just because your diagnosed with ms doesnt means you cant even try to push everyday. Otherwise the ms will take over. That's the end

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2021-02-11 19:34:34

LindaBlacker

17/02/2021 at 16:28

Good advisor

LindaBlacker

Last activity on 12/05/2024 at 21:36

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

I have my vaccine for covid tomorrow at noon. I'm a bit nervous as I dont think enough research on the vaccine has been done looking at long term. But here goes I've managed to get a lift to and fro by a kind Gentleman doing volunteering his time to help the vulnerable.

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2021-02-17 16:28:07

LindaBlacker

19/02/2021 at 12:07

Good advisor

LindaBlacker

Last activity on 12/05/2024 at 21:36

Joined in 2020

180 comments posted | 71 in the Living with multiple sclerosis group

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Had my covid vaccine yesterday my arm is swollen and black. Went straight home to bed. Lucky for me my fiance cooked tea. Felt wiped out now my arm is rock hard feels hot inside

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2021-02-19 12:07:07

cwright17

10/08/2023 at 17:59

Good advisor

cwright17

Last activity on 18/11/2024 at 15:35

Joined in 2021

35 comments posted | 27 in the Living with multiple sclerosis group

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hi Courtney 👋 now, I wasn't given any special instructions, because I'd started ocrevus in June 2021, but I had used the BNF to look it up and how I can get infected more easily. However, I didn't leave the house much anyway, and it was only my now-husband who would leave to go to work. I remember, Dec 2021, he caught covid, scuppering our plans for Christmas Day. I tested the same time as him, and I was covid negative 🤣 I'd had an infusion at the beginning of the month, so I was definitely immunocompromised! We both took tests to see when he would be fine to go back to work, and to see whether I'd caught it in the meantime 🤷‍♀️ nope! I'd only had 1 infection of covid in Feb 2021, and I wasn't ill, I just needed more sleep.

I like to tell hubby and our friends that my immune system is so overpowered that, when there's no infection to fight, it'll attack my myelin.

See the signature

Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)

MS and the Coronavirus - How are you handling the pandemic? https://www.carenity.co.uk/forum/other-discussions/living-with-multiple-sclerosis/ms-and-the-coronavirus-3069 2023-08-10 17:59:55

5
6
7
Go to

MS and the Coronavirus - How are you handling the pandemic?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...