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MS and the Coronavirus - How are you handling the pandemic?
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LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Multiple sclerosis Forum
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I've just been advised by someone on face book that we ms sufferers arent any more at risk than anyone else x
Scottydog
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Last activity on 12/05/2021 at 19:48
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4 comments posted | 4 in the Multiple sclerosis Forum
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I spoke to my nurse a couple of weeks ago
As i take fingolimod i asked her whats the risk of contracting coronavirus she read out the last blood test 3 months ago and apparently my lymphocyte count is just below a average healthy human being, so iam no more oat risk than a healthy person
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Multiple sclerosis Forum
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Hi scotty dog that is good news. We are a tough bunch us ms patients. Good luck xx
Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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1,280 comments posted | 58 in the Multiple sclerosis Forum
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Good morning everyone,
How are you today?
How are you managing your MS now? Is it more complicated this time of year? Have you returned to a "normal life" after these few months of lockdown? Have you noticed any flares or changes in your MS post-lockdown? Have you ben able to reschedule or resume any appointments or treatments?
Feel free to share! We are all here to help each other!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
nameless
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nameless
Last activity on 08/06/2023 at 11:50
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19 comments posted | 18 in the Multiple sclerosis Forum
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@Courtney_J I'm doing alright. I'm still pretty much staying at home as I'm nervous about going out with everyone and taking public transport and going to the shops. I just finished a significant flare, worse than any I've had in a while, I wonder if the stress contributed? Hope all are well.
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Multiple sclerosis Forum
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I've not had a good experience love. Last wednesday I had a bad fall. I'd broken my hip. Not in a good situation with this virus in hospitals. Hopefully with this heat it will keep it at bay. Hope your all doing well and keeping safe and strong x
Scottydog
Scottydog
Last activity on 12/05/2021 at 19:48
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Iam gd
Not worried about it personally, still up at 5 30 every morning, still doing things with the kids, on the plus side had a mri scan a week ago no new scars and disease is not active
Susiek
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Susiek
Last activity on 17/11/2024 at 18:28
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18 comments posted | 14 in the Multiple sclerosis Forum
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@LindaBlacker I hope you are doing okay I too have secondary progressive ms and live alone in the beginning i was struggling with food shopping but now get delivery's once a week my friend used to come over and put it away for me but not seeing her just now just speak to her on the phone these are scary times for everyone I'm just trying to stay positive and i have my routine to do hope you can too🌈
LindaBlacker
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LindaBlacker
Last activity on 12/05/2024 at 21:36
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180 comments posted | 71 in the Multiple sclerosis Forum
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Hi susie lovely to meet you. I do hope you keep well. Noticed nice havnt approved two drugs to help people with secondary ms. One slowed the decline. The other helped with mobility. Seems people with secondary ms are left out. Good luck x
Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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Hello everyone,
How are you holding up now that winter holidays are approaching?
Have you been able see your neurologist or other doctors? Have you thought about getting the COVID-19 vaccine if and when it becomes available to you? Do you know if MS patients will be able to get it?
@Toya911 @JoanJordan @BenGuy @Rolley5 @Avbye1 @Bookie @KClews @Dmarie67 @Shipley71 @Melfie @Joooly @Acceber @Pangelina @Jennibowles @Jolly1980 @Fluffyman @Rubytheareggienan @Shazza
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
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Courtney_J
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Courtney_J
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Last activity on 13/10/2022 at 16:47
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1,280 comments posted | 58 in the Multiple sclerosis Forum
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Hello dear members,
While the Coronavirus epidemic concerns many across the UK (and Carenity members too), I've created this discussion to allow you to talk specifically about the virus in the context of cancer, as we all know that patients can be weakened by their treatments.
Have you had any special instructions from your doctor regarding your care? Are you going to limit your travel? Do you have any advice for others?
Take care,
Courtney