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What is your MS story? Let's share!

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Courtney_J

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13/07/2020 at 18:49

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Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 58 in the Multiple sclerosis Forum

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Hello everyone,

How are you feeling today? emoticon cute

I thought I would open this discussion so we can all get to know one another better!

So, what is your MS story? How and when were you diagnosed? Which type of MS do you have? How are you doing today? What medications or treatments have you tried? Do you have any advice to share with someone newly diagnosed with MS?
@Miss.MS‍ @Rolley5‍ @VickiD‍ @Emma123‍ @Emma1024‍ @shunt999‍ @Zombieapplebaby‍ @madsheep71‍ @Tilly68‍ @Bern50‍ @Meggie333‍ @182614‍ @Diva360‍ @Charlie12345‍ @Harps10‍ @Jemgavlaa‍ @Fl33tw00d‍ @thembrough‍ @EmilieH‍ @Kareema‍

Feel free to introduce yourself and share your story here!

Take care,
Courtney

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nameless

15/07/2020 at 16:45

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nameless

Last activity on 08/06/2023 at 11:50

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19 comments posted | 18 in the Multiple sclerosis Forum

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@Courtney_J Hi Courtney, I've been on this site for a few years now, but I also do think it would be nice to get to know one another! I've had RRMS for at least a decade now and it was quite a shock to me when I was diagnosed. I used to be a very active and fit person. I'm doing alright generally, I may be making a change in my medicines so I'm both a bit worried and hopeful about it. Hope everyone is well! xx

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-07-15 16:45:55

Susiek

20/07/2020 at 14:30

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Susiek

Last activity on 17/11/2024 at 18:28

Joined in 2018

18 comments posted | 14 in the Multiple sclerosis Forum

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Got my first haircut on Saturday so feel good a sense of normality!! How do others feel?

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-07-20 14:30:48

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cwright17

18/11/2022 at 12:05

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cwright17

Last activity on 18/11/2024 at 15:35

Joined in 2021

35 comments posted | 27 in the Multiple sclerosis Forum

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@Susiek I love getting pampered. Even if it's just a haircut or nails doing, it's the best!

See the signature

Charlotte Hargreaves-Wright (he's also double barrelled his name so he can be "Wright" half the time)

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2022-11-18 12:05:06

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LindaBlacker

03/08/2020 at 14:43

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Multiple sclerosis Forum

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Brilliant I had my hair coloured and trimmed. Some sort of normality feels good. Take care x

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-08-03 14:43:48

LindaBlacker

05/08/2020 at 09:46

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Multiple sclerosis Forum

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I was 24yr old when I noticed I couldnt feel nothing wait down. I had a baby to care for that was 1979. I was diagnosed in 1991 as I couldnt move to get out of bed. Alas all that changed when I started working in a gym. Didnt have one symptom. I' have SSPM now. I've had ms forty yrs. Can still walk alas very slowly still exercise on days I feel able to. How about others hope your ms is behaving xx

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-08-05 09:46:09

ladymary

10/08/2020 at 14:39

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ladymary

Last activity on 07/08/2023 at 21:39

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36 comments posted | 27 in the Multiple sclerosis Forum

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Hi everyone, I've had MS for almost 15 years. I was first diagnosed with RRMS after having vision and balance troubles. My doctor recently told me that it has transitioned to SPMS, so I've been feeling a bit down. I've also started having spasticity in my legs, so that has been an adjustment. Hope you all are coping!

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-08-10 14:39:51

LindaBlacker

Edited on 10/09/2020 at 13:25

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Multiple sclerosis Forum

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Hi lady Mary hope your coping with recent diagnosis. Only the patient can control ms minimizing any additional stress. Your doing brilliantly love. We all need to tell ourselves we can do it. Sure we get days when we feel like throwing in the towel. Sheer determination keeps us fighting ms. Hoping one day theres a cure good luck xx

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-08-11 09:32:36

MSMaven

17/09/2020 at 15:54

MSMaven

Last activity on 10/04/2023 at 18:57

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Hello, I've just recently joined the site! I was diagnosed what feels like forever ago (going on 10 years I think?) and it was very hard for me. I was very active before, but when I started having vision and balance problems I had to give up at lot of that. I had a difficult time accepting it - the diagnosis and then coming to terms with what it would mean for me. I still have bad days where I feel depressed about the things I can't manage anymore and the what-ifs about where I would be in my life if I hadn't gotten MS. I'm lucky that my family is supportive and now that I've found this group! Praying for a cure as well!

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-09-17 15:54:42

LindaBlacker

30/09/2020 at 15:47

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Multiple sclerosis Forum

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Bless you Ms Maven I too felt like yourself. I seemed to accept the relapsing ms. Then it turned into secondary I was scared stiff. I plod on doing my best come on love dont give in you can do it. We are all a tough bunch

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-09-30 15:47:14

LindaBlacker

19/11/2020 at 10:42

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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180 comments posted | 71 in the Multiple sclerosis Forum

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Luckily for me a used to be a personal trainer. So I still exercise obviously not as much. I only wish I could do half of what I used to do. At least we are all still breathing have a life to live. Cheers you all

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-11-19 10:42:56

lynseyg

23/12/2020 at 08:09

lynseyg

Last activity on 15/07/2024 at 21:43

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1 comment posted | 1 in the Multiple sclerosis Forum

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I have been living with MS for more than half my life, don't worry I am not going to moan. I have found an inner strength or as my husband says it is call being stubborn, don't get me wrong on the bad days are bad, that feeling of just being so tired and weak, they are hard but I joined my local MS group and meet my MS buddy, she know my symptoms and I know hers, we go to hospital appointments together because sometime you don't remember what day of the week never mind trying to remember what your doctors have told you. She is more than an MS buddy, when I done sponsored swim for the group she help me train, and when we are finally come to an end with covid we will be starting an MS pod cast.

If I can saying anything about having MS don't give in, don't let it become the only thing about you, show the world that we shine xxx

What is your MS story? Let's share! https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/what-is-your-ms-story-lets-share-3581 2020-12-23 08:09:58

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