Back

Patients Multiple sclerosis

Top 3 things that help you manage your MS

253 views
24 times supported
18 comments

Margarita_k

Community manager

19/07/2018 at 17:11

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 88 in the Multiple sclerosis Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello,

I propose each of you shares here the top 3 things that help you manage your disease. The things or people or actions without which you feel you couldn't cope.

Is it your treatment? Your physical activity? Your doctor? Your patient association's leader?

Any idea/experience is welcome!

All comments

Go to the last comment

BShields

18/08/2018 at 09:25

BShields

Last activity on 08/02/2021 at 22:10

Joined in 2015

1 comment posted | 1 in the Multiple sclerosis Forum

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

Take stress out

Marijuana

sleep

See the signature

B Shields

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-18 09:25:55

JosephineO

Community manager

20/08/2018 at 10:14

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@BShields Sleep is always a fantastic way to rejuvenate yourself. I love drinking a cup of chamomile tea before going to bed to help me relax.

See the signature

Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-20 10:14:34

Bagpuss66

27/08/2018 at 20:30

Bagpuss66

Last activity on 17/12/2021 at 15:29

Joined in 2017

9 comments posted | 5 in the Multiple sclerosis Forum

Rewards

Contributor
Explorer
Evaluator

View profileView Add a friendAdd Write

Talking about how am feeling to an expert is often helpful. And being open to new ideas.

See the signature

LizW

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-27 20:30:53

Bagpuss66

27/08/2018 at 20:31

Bagpuss66

Last activity on 17/12/2021 at 15:29

Joined in 2017

9 comments posted | 5 in the Multiple sclerosis Forum

Rewards

Contributor
Explorer
Evaluator

View profileView Add a friendAdd Write

And my neuro physio is very helpful

See the signature

LizW

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-27 20:31:58

JosephineO

Community manager

Edited on 26/09/2018 at 15:31

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Yes, talking to others really helps. That's what Carenity is for too ;)

Do any other members have anything to add that helps them?

See the signature

Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-08-30 14:18:08

stutaylor

10/10/2018 at 07:59

stutaylor

Last activity on 03/11/2020 at 21:02

Joined in 2017

9 comments posted | 6 in the Multiple sclerosis Forum

Rewards

Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I find it difficult to know when it’s time for me to stop and rest. Learning how to listen to your body is essential whether it is lower mood, slower thinking and movements, higher levels of anxiety and impatience. These signs are often ignored by myself and end up becoming worse.

However top 3 things for me;

No caffeine

moderate exercise

good pain killers the day after beta interferon injection

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-10 07:59:03

JosephineO

Community manager

10/10/2018 at 09:23

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 44 in the Multiple sclerosis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@stutaylor Hello, thanks for sharing this, I hope it helps someone else :)

A bit of moderate exercise is always good for the body and mind.

See the signature

Josephine, Community Manager

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-10 09:23:52

agnespaddy

22/10/2018 at 18:17

Good advisor

agnespaddy

Last activity on 15/06/2022 at 20:43

Joined in 2016

6 comments posted | 3 in the Multiple sclerosis Forum

Rewards

Good Advisor
Explorer

View profileView Add a friendAdd Write

Having S.P. I have had to learn acceptance as to what I can or can't do. So listening to my body,not overdoing things and having support are the main things that help apart from pain killers that is lol.

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-22 18:17:33

Unregistered member

23/10/2018 at 13:46

Well done, keep up the good work and smiling

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-10-23 13:46:18

Pleasance

30/11/2018 at 17:18

Good advisor

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014

63 comments posted | 29 in the Multiple sclerosis Forum

Rewards

Good Advisor
Contributor
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@iian22 @agnespaddy @stutaylor @Bagpuss66 My husband really helps me, it breaks my heart to slowly become more and more in his care but he never shows any annoyance. I am very lucky despite of my unluckiness :)

See the signature

Pleasance

Top 3 things that help you manage your MS https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/top-3-things-that-help-you-manage-your-ms-2479 2018-11-30 17:18:28

Members are also commenting on...

Articles to discover...

04/10/2024 | Advice

Multiple sclerosis (MS) and sexual dysfunction: everything there is to know!

30/05/2024 | News

What are the benefits of herbal medicine for multiple sclerosis?

24/04/2024 | Testimonial

Multiple Sclerosis: “I am a warrior, and I will overcome this illness with love and positivity.”

02/02/2024 | News

Everything there is to know about Ponesimod (Ponvory®) and Fingolimod (Gilenya®)

19/05/2017 | Testimonial

Adjusting to life after being diagnosed with MS

23/03/2018 | News

MS drug hope for secondary-progressive stage

13/06/2016 | News

New treatment can halt aggressive multiple sclerosis

02/10/2018 | Advice

Brain fog: Causes and how to cope

Top 3 things that help you manage your MS

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...