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Living with the effects of MS
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ladymary
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ladymary
Last activity on 07/08/2023 at 21:39
Joined in 2017
36 comments posted | 27 in the Multiple sclerosis Forum
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Hello everyone,
I was just wondering if anyone has found a soft exercise routine that they can do with MS? I feel really tired, but I still want to get some activity in.
Yank34
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Yank34
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Last activity on 19/11/2024 at 18:46
Joined in 2015
291 comments posted | 59 in the Multiple sclerosis Forum
17 of their responses were helpful to members
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Hi ladymary,
Wish I had sagely advise for you but because everyone with MS can so often be soooo different, don't think any particular intervention, exercise etc is going to "fit" everyone. Perhaps the best advice may be simply to "listen to your body" and personally always try to believe/act upon/use my mind (cerebral cortex - the area of our brains that do all the "thinking") which is stronger/more powerful than my 24/7 malfunctioning body! My MS lesions are located in my brain stem (to my knowledge), causing some rather weird symptoms apart from the "usual" spasticity, neuropathy etc but thankfully possessing Taurean (Zodiac sign) stubbornness, always need to NOT let my MS rule myself, at least as much as possible. I usually get the majority of my exercise through gardening and housework (inside/outside my home is rather large). Of course, forever trying to find "anything" I have "misplaced" certainly increases the amount of steps walked/stairs climbed! I also try to specifically exercise my arthritic fingers/hands, neck/back etc but in all honesty this takes a REAL EFFORT, especially having fatigue that is 1 of the biggest barriers, perhaps for everyone (?) and undoubtedly in my case. Hopefully your MS will soon let you know if you're doing "too much", if/when that's the case, take a "breather/ break" until your body recovers enough energy to do a little more? Not sure if the above helps? Always here, or at least try to be, for you (and anyone else) - none of us are on our own in our MS journeys x
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Ann
Julie52
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Julie52
Last activity on 02/03/2023 at 06:19
Joined in 2018
12 comments posted | 4 in the Multiple sclerosis Forum
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Julie Owen
ladymary
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ladymary
Last activity on 07/08/2023 at 21:39
Joined in 2017
36 comments posted | 27 in the Multiple sclerosis Forum
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@Yank34 Hello Yank34,
Thanks for your reply and sorry I got back so late. I need to log-in more often. The fatigue really is the worst of it for me, sometimes I feel like I couldn't get out of my chair even if my hair were on fire, it's that bad! Just for info, I've been trying water aerobics, very simple, a few times a week and I always stop when I feel its getting to much. The coach already knows about my condition. Seems to be getting better. All the best on your journey.
Yank34
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Yank34
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Last activity on 19/11/2024 at 18:46
Joined in 2015
291 comments posted | 59 in the Multiple sclerosis Forum
17 of their responses were helpful to members
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@ladymary Hello again ladymary -no problem re: your reply...…..I'm sure many of us struggle to find the time & energy to log on! It appears you are "getting a handle" on managing your MS which is basically listening to your body and acting accordingly; think this is the only thing we can do. Always "here" if/when you need/want to "talk". If we don't, want to wish yourself and EVERYONE on Carenity all the best health and happiness possible for Christmas and 2020 x
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Ann
ladymary
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ladymary
Last activity on 07/08/2023 at 21:39
Joined in 2017
36 comments posted | 27 in the Multiple sclerosis Forum
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@Yank34 happy new year to you too!
nameless
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nameless
Last activity on 08/06/2023 at 11:50
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19 comments posted | 18 in the Multiple sclerosis Forum
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I'm just so tired of being tired! I can't move somedays. This isn't who I am, I was always so active. Anymore else mourning the person they used to be?
Yank34
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Yank34
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Last activity on 19/11/2024 at 18:46
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291 comments posted | 59 in the Multiple sclerosis Forum
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Good morning Nameless. I often think we all, to some degree, mourn for the person we once were, especially as unfortunately MS can be such a "nasty" and personally viewed "affront/attack, purposely directed at ourselves"! Although only diagnosed 6 years ago, it began almost 42 years ago as RRMS but erroneously diagnosed and treated as trigeminal neuralgia. MY MS Nurse and myself came to the conclusion that it was only in 2013 that it changed to SPMS (although the last Consultant seen in 2016 categorically stated it was NOT progressive). Neither of us agree with him because apart from 4 days (following an acupuncture/reiki session, have had 24/7 MS symptoms). Although I still have "flares/exacerbations" 3-4x a year, these usually "resolve" between 2-6 months but unfortunately "leave myself with worsening/additional" neurological deficits. I fervently try to NOT to "think about the person I was, how much energy I had, how much freedom/choices once had because that is in the past - can't go back, can only go forwards. Sure that everyone with MS can so truly empathise with yourself, like myself. x
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Ann
Rosiesue
Rosiesue
Last activity on 20/10/2020 at 12:44
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2 comments posted | 2 in the Multiple sclerosis Forum
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@Yank34 hi I have just come back on here tonight. Havent had a good couple of years feeling so low and depressed .Now I to have the tiredness .and feel so sad about the corona virus so scary . How are you xx
Braveheart180
Braveheart180
Last activity on 20/11/2024 at 18:04
Joined in 2020
3 comments posted | 3 in the Multiple sclerosis Forum
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Constant tingling 24/7 left leg stairs nightmare
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Hello everyone,
MS can affect everyone differently. But how to cope with the emotional challenges of having a disease like MS?
The Multiple Sclerosis Society UK has made a booklet covering this subject. You can find it here.
All the best,
Marina