Best discussions

Multiple sclerosis Forum

1,898 members
233 discussions

How to establish the right diagnosis of multiple sclerosis? How to avoid a flare-up? Where is the current medical research? Join our patient community and family members of patients! Thousands of people are waiting for you to share information, exchange experiences and provide you with advice and support.

Medical fact sheet

Multiple sclerosis

cwright17

11/09/2023 at 12:14

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

See the best comment

cwright17

20/06/2022 at 12:24

@Mrspotter hi Mrspotter. I've come across this myself, but I have found that if I haven't done a bowel movement in a few days, where I would be concerned, I would take a movicol and try to move around more. The fact that you're passing gas looks to me like your bowels haven't fully been affected. I hope my bit of insight helps you,

See the best comment

Best discussions

Multiple sclerosis Forum

Multiple sclerosis

10 best exercises for MS patients

Tiredness and pain

Relapsing remitted but am completely disabled because of a stroke in July 2022

What type of MS do you have?

Multiple Sclerosis - Disease-modifying drugs (DMDs)

What is your MS story? Let's share!

Multiple Sclerosis - Do you also get dizziness or vertigo?

Multiple Sclerosis stem cell treatment 'helps patients walk again'

MS and the Coronavirus - How are you handling the pandemic?

How to claim government help for cost of living expenses?

What treatments have you tried for MS? What works for you?

MS and bladder problems

New drug could reverse the damage of MS

Anyone had a seizure

Heat waves and MS

Copaxone for relapsing MS

MS and bowel problems: Any advice?

World MS Day 2022

MS and the Epstein-Barr virus: Is there a link?

Has anyone tried yoga?

Multiple sclerosis Forum

Give your opinion

Articles to discover...

Medication fact sheets - patient opinions...