Multiple sclerosis Forum

  •  1,876 members
  •  234 discussions

How to establish the right diagnosis of multiple sclerosis? How to avoid a flare-up? Where is the current medical research? Join our patient community and family members of patients! Thousands of people are waiting for you to share information, exchange experiences and provide you with advice and support.

Medical fact sheet

Multiple sclerosis

avatar bozzys

avatar GalDriver

avatar Gilda

avatar Shanka1974

avatar Susiek

avatar Somya.P

avatar cwright17

avatar Somya.P

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

See the best comment

avatar KatieD

avatar Somya.P

avatar Byojaxs

avatar Luckie1

avatar Sueharmonypuss

avatar Sbw280874

avatar cwright17

avatar Juliette

avatar Icklenuttychick

avatar Kyleigh.J

avatar MJ1183

avatar LizziB

avatar cwright17

avatar Margarita_k

avatar Jillytots

avatar Paula11

avatar cwright17

@Mrspotter hi Mrspotter. I've come across this myself, but I have found that if I haven't done a bowel movement in a few days, where I would be concerned, I would take a movicol and try to move around more. The fact that you're passing gas looks to me like your bowels haven't fully been affected. I hope my bit of insight helps you,

See the best comment

avatar Madmax1

avatar Juper79

avatar cwright17

avatar cwright17

avatar Mrspotter

avatar Courtney_J

Give your opinion