Multiple Sclerosis - Disease-modifying drugs (DMDs)

Hello @Rhubarb! How are you feeling today?

Thank you so much for starting this discussion. Firstly, I want to commend your incredible strength in facing both RRMS and breast cancer at the same time and congratulate you on beating the latter. It's truly inspiring how you've overcome such challenges.

Regarding your current situation, it's important to note that different individuals can have varying responses to these medications, and what works for one person might not be the best fit for another. I trust you have consulted your healthcare provider first for professional advice tailored to your specific situation.

In any case, let me go ahead and tag a few members of our community that I feel might be able to help answer your question better:

@TomShillington @Nexabyqu @Elk217015 @Sdianew03 @jayane @kateheath @Chellechelle @Kanaboyo @Mrspotter @flowergirl @Narcisse @waggywoo1 @nazza91 @Luke3341 @Iannoh @Hayleybunny @Trayback @EireLiz @Sinead1 @anne2211 @cwright17 @SoniaNIN @rkeiza @shellmo4

Hello everyone! How are you?

Have you undergone treatment for MS with either Plegridy, Copaxone, or Tecfidera? How was your experience?

Thank you so much for your contribution, and have an amazing day!

Take care now,

Somya from the Carenity team

Good morning 😁

I've seen positive posts regarding copaxone, but it didn't fare well for me being on it. Was on it for 5 years, then tried on tysabri after I had new lesions on my spine (c3/c4) but I couldn't take more than the 1 dose because I'm JCV positive. So, back on copaxone I went for a few months before I had a status epilepticus event and was hospitalised for 27 days. I was given IV prednisolone, and I continued the copaxone injections until I got a call from my MS nurse telling me to stop my copaxone on X date, as my neuro had enough evidence to get me on ocrevus! It's a wonder drug! And now I'm looking at going on kesimpta later this year! Sure, I'll be doing self injections again, but at least it's only once monthly, apart from my starter doses, rather than 3 times a week 48 hours apart 😅

But, do what feels best in your heart and mind. You can always ask to change drugs if you don't feel its working enough 🫂 good luck ❤️

I got started on copaxone when I had my clinically definite diagnosis of RRMS, back in 2015. It's been alright for me over the years, but my MS is aggressive, and caused me to start having generalised (the tonic clonic) seizures. When the seizures caused me to have to go into hospital, my neurologist had enough evidence to get me on ocrevus. That one's doing alright for me, and I haven't had any new lesions since I started it, back in 2021!

Ask your neuro which one is the best for stopping new lesions, that's all I can suggest 🫂 and I'm sorry you've had a difficult time with your additional health conditions while coming to terms with your diagnosis.