Back

Emery-Dreifuss muscular dystrophy Forum

  •  104 discussions

Medical fact sheet

Emery-Dreifuss muscular dystrophy

All
Living with a rare disease
Living with diseases affecting muscles, joints and-or skeleton

 Living with diseases affecting muscles, joints and-or skeleton

Life after spinal sugery

avatar Somya.P

 Living with diseases affecting muscles, joints and-or skeleton

Do you have cramp fasciculation syndrome?

avatar Somya.P

 Living with diseases affecting muscles, joints and-or skeleton

Pip for cramp fascination syndrome

avatar Gally63

 Living with diseases affecting muscles, joints and-or skeleton

Life after a joint replacement: Share your experiences and advice!

avatar ladybear1

avatar velocette

avatar Mrs E Larkin

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask! 

See the best comment

 Living with diseases affecting muscles, joints and-or skeleton

Shout what really gets you angry!!!!

avatar velocette

avatar Courtney_J

avatar marcusbm

 Living with diseases affecting muscles, joints and-or skeleton

CBD oil for arthritis

avatar Sonicbear

avatar josie42

avatar catwomanno.1

 Living with diseases affecting muscles, joints and-or skeleton

Spinal stenosis

avatar Sonicbear

avatar Polina.K

 Living with diseases affecting muscles, joints and-or skeleton

Curvature of the spine- Back problems

avatar Cammy9

avatar Hippymum

avatar Faithkitty

 Living with diseases affecting muscles, joints and-or skeleton

Duloxetine for fibromyalgia

avatar Jhiggy64

avatar LizziB

 Living with diseases affecting muscles, joints and-or skeleton

Suicide

avatar Tigger.co.uk

avatar marcusbm

avatar LizziB

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

 Living with diseases affecting muscles, joints and-or skeleton

Osteoarthritis and pain

avatar Sickofpain

avatar lynningham

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Pregablin

avatar lesmal

avatar Sunshine5

avatar sivorn

 Living with diseases affecting muscles, joints and-or skeleton

Osteoarthritis of the knee

avatar Courtney_J

avatar Sunshine5

avatar juliamac

 Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Knee replacement

avatar Moonstone1

avatar Jennyh44

avatar aglowlady

 Living with diseases affecting muscles, joints and-or skeleton

Total hip replacement: Can you share any advice?

avatar VICKICOFFEY

avatar dantheman

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Can't Apply for PIP (DLA) Must Be Attendance Allowance Because I'm too old. Anyone Applied for Attendance Allowance in UK

avatar Pagma1

avatar Dodger99

avatar ladybear1

 Living with diseases affecting muscles, joints and-or skeleton

Having trouble getting my knee operation scheduled because of COVID-19

avatar Nanaclaire

avatar Tony65

avatar Courtney_J

 Living with diseases affecting muscles, joints and-or skeleton

Leg swelling

avatar Smudger

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

What are your expectations from Carenity and what would you like to see in the future?

Survey

How were you diagnosed?

Articles to discover...

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

06/02/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

07/05/2018 | Advice

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

Drugs and libido: Which treatments can affect your sexual desire?

18/11/2024 | News

Drugs and libido: Which treatments can affect your sexual desire?

Attachment disorders: How do they affect our interpersonal relationships?

16/11/2024 | News

Attachment disorders: How do they affect our interpersonal relationships?

Procrastination: Bad habit or a secret self-care strategy?

08/11/2024 | Advice

Procrastination: Bad habit or a secret self-care strategy?

Bloating: Everything there is to know!

04/11/2024 | News

Bloating: Everything there is to know!

Common health issues in pregnant women: Everything you need to know!

21/10/2024 | News

Common health issues in pregnant women: Everything you need to know!

Turmeric: The golden source of anti-inflammatory and antioxidant benefits

19/10/2024 | Nutrition

Turmeric: The golden source of anti-inflammatory and antioxidant benefits