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Methotrexate and the Coronavirus?

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psorinotsorry

20/03/2020 at 11:41

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psorinotsorry

Last activity on 02/07/2020 at 14:46

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Good morning everyone,

For those like me who take Methotrexate what do you think about the risk of coronavirus? Methotrexate weakens our defenses and also brings a certain risk to the lungs. Shouldn't my treatment be interrupted until this all passes or at least until the risks become better known?

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Courtney_J

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06/05/2020 at 16:43

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Courtney_J

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Hello everyone, I thought I would check in and see how everyone is doing and maybe tag some members who may have not seen this discussion.

How are you doing in lockdown? Are you keeping busy and continuing your treatments? Have you seen any changes in your symptoms due to the changes in lifestyle the lockdown has imposed on us all?

@SharronSP‍ @Mcmullen‍ @Macpheb234‍ @Sparky62‍ @Bailey‍ @Olive62‍ @Lorrae09‍ @Debbiejane‍ @Layton‍

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Methotrexate and the Coronavirus? https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/methotrexate-and-the-coronavirus-3083 2020-05-06 16:43:44

Macpheb234

06/05/2020 at 17:16

Macpheb234

Last activity on 06/05/2020 at 17:11

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@Courtney_J Hi Courtney. I’ve been doing a little baking and some light gardening both I which I love. Unfortunately the next few days are so painful with my wrists and knee hurting so much. I don’t take any painkillers as I take a load of other meds already. Used to

be on Nefopam but then it was stopped and my condition became worse. Why do these authorities not realise how much we need these meds expensive though they may be, the completely alter our way of live. My wonderful rheumatologist tried to get them to keep

me on the Nefopam but the answer was no!! I’m still injecting my methotrexate as per instructions but just got another letter today from NHS telling me to isolate for another 12 weeks!! It’s really affecting my mental health especially on dark wet cold days when I can’t sit out.

Methotrexate and the Coronavirus? https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/methotrexate-and-the-coronavirus-3083 2020-05-06 17:16:27

Bailey

06/05/2020 at 20:41

Bailey

Last activity on 08/09/2023 at 13:41

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@andreag @andreag I’m on the same medication injection and no we will not get a letter as there is a scoring guide and this injection scores low, not sure why though.

Methotrexate and the Coronavirus? https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/methotrexate-and-the-coronavirus-3083 2020-05-06 20:41:59

Bailey

06/05/2020 at 20:42

Bailey

Last activity on 08/09/2023 at 13:41

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@andreag @andreag I’m on the same medication injection and no we will not get a letter as there is a scoring guide and this injection scores low, not sure why though.

Methotrexate and the Coronavirus? https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/methotrexate-and-the-coronavirus-3083 2020-05-06 20:42:19

cwissy

09/07/2020 at 13:01

cwissy

Last activity on 18/05/2020 at 17:17

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Hi all. I was on sulfasalazine 2000mg per day. My skin has now erupted in to big red blisters and spots and it is so itchy. The Drs have tried me heavy doses of steroids to try to dampen down this condition with no success. I have now come off this drug and with my local herbalist we are now going down an alternative route. Will keep you updated

Methotrexate and the Coronavirus? https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/methotrexate-and-the-coronavirus-3083 2020-07-09 13:01:39

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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