Back

Patients Psoriatic arthritis

How do you manage your daily pain with PA?

168 views
7 times supported
10 comments

JosephineO

Community manager

31/05/2019 at 17:46

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 6 in the Psoriatic arthritis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

Hello everyone,

Unfortunately, everyday chronic pain is a reality from many people suffering from PA. So we wanted to ask you, what do you do to manage your pain each day? Did you use any pain management applications? Any alternative medication?

Please share in the comments! :)

All comments

rita_portsmouth

03/06/2019 at 16:48

rita_portsmouth

Last activity on 26/01/2023 at 06:00

Joined in 2019

8 comments posted | 1 in the Psoriatic arthritis Forum

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

I really feel better now I've moved to a gluten-free and lactose-free diet, one year ago. I'm still in pain but I feel there has been change in a good way.

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-06-03 16:48:05

p.adden

05/06/2019 at 11:48

p.adden

Last activity on 01/10/2024 at 11:49

Joined in 2019

7 comments posted | 5 in the Psoriatic arthritis Forum

Rewards

Contributor
Committed
Explorer

View profileView Add a friendAdd Write

I have tried all the drugs with NO effect I don't know where to look

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-06-05 11:48:44

DebsBowman

08/06/2019 at 13:35

Good advisor

DebsBowman

Last activity on 13/06/2024 at 11:46

Joined in 2018

10 comments posted | 2 in the Psoriatic arthritis Forum

Rewards

Good Advisor
Contributor
Committed
Explorer

View profileView Add a friendAdd Write

I suffer this day in day out it goes so bad some time I find it so hard to do any thing some day just getting up put me in so much pain on I'm on strong pain killers and there no longer working I getting to the point where standing is just to much to cope with the pain is so bad it make me cry and I get so low I thinking of just ending it all I can't live with it I nead a brack from it suffering pain day in day out and night time is worsened I can sleep so I'm have to get up every 2 hours or so has I can only lay on one side and the pain gets worse as I lay on it and in the end it gets so bad I have to sit up to take more pain treatment and some time I end up over loseing on then to and the pain killers as mimicked up my liver so now I suffer liver disease and my joint and beening diabetic to I some times think what the point I get pain in my side to from my liver disease is making me feel sick and I have to go to the bathroom a lot to because my liver don't work that well I get a bold up of toxin in my body to

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-06-08 13:35:36

Trudij

22/06/2019 at 16:44

Good advisor

Trudij

Last activity on 22/04/2022 at 17:30

Joined in 2017

30 comments posted | 3 in the Psoriatic arthritis Forum

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I'm on no treatment or any painkillers . But I'm in no more pain than I was when I was on pain killers . This disease is ruining my life I'm 50 and I feel like I'm 90 years old

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-06-22 16:44:41

Unregistered member

02/07/2019 at 23:00

Going through different treatments at the moment but each treatment goes on for about a year and so far nothing has really helped my symptoms. Have been given different painkillers but find most do very little to help. Sleep badly so always very tired and some days so muddled cannot think straight. I definitely know when i'm having a good day in comparison to having a bad day. Only get to see the Consultant about once a year otherwise monitored by nurses who are supposed to make contact but who do not. Monitor my own blood tests as no one else seems to be doing this. Tend now to rely on over the counter pain relief as do not have a current prescription for anything else.

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-02 23:00:28

JosephineO

Community manager

05/07/2019 at 15:07

Good advisor

JosephineO

Community manager

Last activity on 15/07/2024 at 09:21

Joined in 2018

989 comments posted | 6 in the Psoriatic arthritis Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@rita_portsmouth @p.adden @DebsBowman @Trudij @Dee237 Thank you all for sharing :)

What do other members try? Do you use some of the ways previously mentioned?

@magicmick‍ @upanddown‍ @lesjames‍ @Darukswoman‍ @bantam‍ @Nicolabruce247‍ @phyll144‍ @Lynnm209‍ @georgelh‍ @Sallyhr‍ @Beaton‍ @Marrkk‍ @Pooks69‍ @Debbi28‍ @ColieDevoy‍ @rita_portsmouth‍ @coryyuen‍ @Lynn1976‍ @Jolanta‍ @Lcomg64‍ @Flints‍ @freddie78‍ @EllieJ97‍ @Nicolad‍ @Fullerdonna2‍ @Softcrab‍ @suse2001‍

See the signature

Josephine, Community Manager

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-05 15:07:28

p.adden

05/07/2019 at 20:57

p.adden

Last activity on 01/10/2024 at 11:49

Joined in 2019

7 comments posted | 5 in the Psoriatic arthritis Forum

Rewards

Contributor
Committed
Explorer

View profileView Add a friendAdd Write

I have tried everything over the past 3 years with zero relief which intern drags you down a bit thank god I have got some good private pensions to cushion the impact of this terrible condition.

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-05 20:57:28

ElkePickard

Edited on 23/07/2019 at 10:23

ElkePickard

Last activity on 29/07/2024 at 20:09

Joined in 2018

5 comments posted | 3 in the Psoriatic arthritis Forum

Rewards

Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hi All, I'm on sulfasalazine x6 daily , inject imraldi every two weeks and have just started pregabalin, the new drug does take the edge off the pain, I really struggle with the fatigue, it's so tempting to stay in bed, I have to push myself e very minute of every day, I dread to think about the future.

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-23 10:23:15

p.adden

23/07/2019 at 10:26

p.adden

Last activity on 01/10/2024 at 11:49

Joined in 2019

7 comments posted | 5 in the Psoriatic arthritis Forum

Rewards

Contributor
Committed
Explorer

View profileView Add a friendAdd Write

My advise is simple, there is no cure, and no relief from drugs, they don't work, so enjoy the rest of your life as you can, life has no boundaries so enjoy what you have in life, and if you can live it to your best.

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-23 10:26:19

Unregistered member

24/07/2019 at 00:38

I myself have multiple medical conditions including Psoriatic Arthritis with gutter psoriasis in the folds of the skin mostly very red and sore. However the Psoriatic Arthritis has caused me untold pain and discomfort. Daily I have to put up with the balls of my big toes knocking on the ground however some of the other toes are going the same way, I have to wear specialized footwear. In the mix I'm a Diabetic two

How do you manage your daily pain with PA? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/how-do-you-manage-your-daily-pain-with-pa-2843 2019-07-24 00:38:08

Members are also commenting on...

reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

Articles to discover...

29/10/2024 | News

Psoriasis complications: What you need to know to better manage the condition!

09/06/2023 | News

Etanercept (Enbrel®, Erelzi®, Benepali®): everything there is to know about this drug!

30/01/2023 | News

Adalimumab (Humira®, Amgevita®, Imraldi®, Idacio®, Hyrimoz® and Yuflyma®): everything there is to know!

24/08/2022 | Testimonial

Fibromyalgia, psoriasis, psoriatic arthritis, and endometriosis: “The best advice I can give is to practice patience!”

19/05/2017 | Testimonial

Struggling with hemiplegic migraines, melanoma and psoriatic arthritis

13/06/2018 | Testimonial

Psoriasis: Effect on daily life and getting treatment

24/10/2019 | Advice

What is biologic therapy? A focused look at inflammatory diseases

21/01/2020 | Advice

Psoriatic arthritis diagnosis: Carenity members tell their story

How do you manage your daily pain with PA?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...