How do you handle fatigue caused by your psoriatic arthritis?

@dadofalad78 I understand what your son is going through, my fatigue eventually drove me to stop working. Fortunately I was much older. It must be so hard for your son being so young. A doctor of mine once used an analogy with me that has really stuck: he said that you that to imagine that your life and energy are like a bowl of soup. Every activity we do takes a spoonful of energy to complete, and once you hit the bottom of the bowl there is no more and you need to rest. It sounds like your son is overworked and overwhelmed. Maybe explain this to him and help him figure out a way to plan his days so that he's not overworked? Has he spoken to his employers about his condition?

I fully understand how your son must feel. I am older but the fatigue is taking over my life now and I cannot control it, I love walking but the pain the next day is overwhelming so I then have to then rest the next day. Only somebody with psoriatic arthritis will understand how we feel so today is my walking day so fingers crossed I will not be in too much pain tomorrow. Take care and be safe. 

There are not many people, including the general public who completely understand how this serious disabling disease can totally affect the sufferers ever day life, for the rest of their lives.

I have suffered from this disease for nearly 40 years, and over that time the restrictions it places on every day life get increasingly more severe.

The Chronic Fatigue has more of a detrimental effect than the Chronic Pain.

The Chronic Pain can be regulated with extremely strong medication but there is nothing anyone can do with regards to the Chronic Fatigue, and ONLY sufferers of this Chronic Disease understand the Chronic Fatigue.

This finally affected my life in the worst possible way imaginable.

After a 40 year relationship and 38 year marriage, my wife left me, saying that she could not be around ill people any more, and that my continual tiredness and lack of energy had just bought her life to a point of stagnation.

Hopefully your son will benefit from any new treatments or medications that become available to improve his Chronic Fatigue.

Unfortunately, research and statistics show that Psyatic Arthritis and the accompanying Chronic Fatigue, leads to an increase in the diagnosis of Severe Depression and also the now linked cases of Suicide due to Chronic Depression.

Hopefully your son will benefit from having someone around him that understands his condition and they are able to give him the mental and emotional support he needs and will continue to need.

Best wishes to all sufferers.

Unfortunately there's is no fix to the fatigue with PsA, he could speak to his specialist rheumy nurse next time. 

But rest and meds is really the only way, it's just lifestyle changes and adjustments and getting the mix right. I was 32 when I got this disease and still worked then.

Good luck

@dadofalad78 Wow Jack, I'm so sorry to hear about your son. I agree with everything people ahve said here. Unfortunately the fatigue kind of comes with the "game" and there's not much we can do. How is he doing? 

@psorinotsorry @LindaRobinson @thelicencee @Trudij @Starke Thank you all for your kind words and replies. My wife and I have been so worried about him and just devastated that there's nothing we can do to help him. We were worried he was heading towards a breakdown. He managed to arrange with his boss to take a little time away the month and he has an appointment with his specialist soon. I'm hoping the specialist will be able to change his medicines or help him find some strategies to cope. 

@dadofalad78 I was diagnosed at 26, I was half way through my degree worked a 30hr week bar job, fostered a 3yr old and had just had a miscarriage. I swam, ran, gym, anything active was my jam so needless to say it was a very bleak time. It is a complete lifestyle change, the ppl around tried to be supoortive and would say at least its not cancer and your not dying, its treatable just keep going. Yes they were right but thats not what you need to hear when the bottom has just fell out of your world. PsA impacts every aspect of your life even relationships and intimacy. It took 2 good yrs to get me back to a very different kind of life. Be patient with him his world is upside down right now and he has to learn to pace, plan and rethink his options. I struggled long after the pains eased with craving my old life and adapting to my new life. Now I know my limits when to stop pushing and to prioritise my physical health over all else, make adaptions and chamges that make things easier but always always keep moving and naps. He will get there with such supportive parents sounds silly but let him grieve for his old life cause thats really what we have to do to find a new way. Its wonderful that yous are reaching out to these forums to try and help him. Hope he keeps well x

It is really comforting to hear your stories, I have psoriatic arthritis and between the pain and fatigue it seems like a never ending battle.  People do not seem to understand about this condition and I think there is a lot more reading material focusing on RA. Some days I try to be really positive and just get on with it and other days I’m crying all the time because I feel like I can not cope with it anymore.  Depression does play a big part.  

Hello everyone, 

Thank you for sharing your stories and experiences with us, this is what Carenity is all about. @dadofalad78‍ How is your son doing now? Has he been able to get in to see his rheumatologist?

For those who may not have seen this thread yet, do you experience extreme fatigue with your PA? How do you manage it?
@Revelx‍ @Randomj1‍ @Mendesfernandes‍ @Maria83‍ @Sleepingbeauty‍ @GillH456‍ @Ronkjb‍ @Hezfisher‍ @Neilly‍ @Tissonlyme‍ @Zoerice46‍ @Christine6303‍ @SharronSP‍ @Mcmullen‍ @Macpheb234‍ @Ambero‍ 

Feel free to share your stories and advice here!

Take care,
Courtney

I used to be the one that would be dragged out of the door by two dogs then would walk so far I’d be dragging them home. Lost my oldest dog in may and the fatigue/depression has me struggling to stay awake at all. I find little and often my best approach