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Patients Psoriatic arthritis
How do you handle fatigue caused by your psoriatic arthritis?
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johntyne77
johntyne77
Last activity on 13/10/2021 at 11:07
Joined in 2020
5 comments posted | 4 in the Psoriatic arthritis Forum
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@dadofalad78 I completely relate to this. As some have mentioned, you can't really understand the depth and impact of our fatigue without having PsA yourself. It affects your body and also your mind. For me just the simplest tasks can have me back in bed for the rest of the day or the following day. It's frustrating to live like that. Has anyone found anything that helps?
LesJ57
LesJ57
Last activity on 12/10/2024 at 16:26
Joined in 2022
4 comments posted | 4 in the Psoriatic arthritis Forum
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I have PsA and used to feel terrible with fatigue constant flares, never any respite. I was on Methotrexate and steroids, which did not seem to touch any of the symptoms. I was given Cimzia a Biologic and after a few weeks I was feeling much better. I among not taking an afternoon nap and generally feel as if i can do more. Nothing like I used to I might add. I would recommend your son seeing the Rheumy.
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
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dadofalad78
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dadofalad78
Last activity on 07/08/2020 at 15:38
Joined in 2019
10 comments posted | 8 in the Psoriatic arthritis Forum
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Hello all,
My son was diagnosed with psoriatic arthritis late last year and it's been a big adjustment for him. He's in his early twenties and living on his own and working now so he's been managing it on his own. He used to be very active and into sport, but since he started working plus the lockdown he has had to put it all aside. His work has taken up a lot of space in his life and he doesn't have time for sport anymore. Apparently his flares have been worse and the fatigue is doing a number on him, he only seems to be able to manage work, sleep, and take his medicines. The medicines take care of the pain, but the fatigue is overwhelming him and it's now starting to take its toll on his work.
Have any of you have found solutions to fatigue? How do you manage it in addition to work or your daily life?
I told him to contact his rheumatologist, but he is resisting, thinking that he can handle it himself. Is there any hope for him?
Thanks in advance,
Jack