What is your biggest daily challenge whilst living with psoriatic arthritis?

@Courtney_J I think this has been brought up in other threads, but for me it's the chronic fatigue. I don't have psoriasis like some people do, so I don't have the "visual" aspect of the disease so often people assume that I'm in good health because they can't see anything "wrong" with me with their bare eyes. People don't understand how debilitating chronic fatigue is and they think that if I just have a kip I'll be healed and ready for action. This and the fact that I can't do anything to change the fatigue is what really frustrated me and makes me want to jump off a cliff some days.

@Starke I agree, I've seen what the fatigue does to my son and I feel so helpless because there's nothing I can do to help. He's lucky that his company is understanding and are willing to make some arrangements for him, I can't imagine what it is like for those who don't have help from work or family.

Hello members,

Have you seen this discussion?

What do you think? What is the most difficult aspect of psoriatic arthritis for you?
@susanbradshaw‍ @Debhali2020‍ @Joannelouise‍ @Junamc‍ @fergiesmum‍ @Fyonna‍ @Karfew‍ @LadyGolfers‍ @Heatherbank‍ @MrsSmalls‍ @Artman49‍ @Ninjaluna‍ @reikiboo64‍ @jessputtick7‍ 

Feel free to share here!

Take care,
Courtney

After 30 years of Psoriatic Arthritis it definitely drains you of all your energy. I managed to work through 20 of those years with the pain. The daily stiffness and fatigue has been a daily thing. Now in my 50’s the mental stress has also become a big part of problem. Nightly pains disrupt my sleep leading to more fatigue. My marriage of 20 years is about to end. My wife has been very loving and caring. But the toll on her mental well being has finally meant she wants a better life. I actually agree with her. The difficult part for me is Psoriatic Arthritis has affected my whole life since it joined me. I’m now in a phase where I’m struggling with it and this has caused me a lot of sadness. 

@Courtney_J 

Hi

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next  as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so  exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

I'll tag some members who have recently joined Carenity ;) Do not hesitate to share your thoughts!

@thomco @PaulineRosalyn @Chrisstina @lunalunes @Stiffsteveo @Castlemanmom @annemarieduncan @Ashmcl90