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Psoriatic arthritis and the Coronavirus - How are you reacting to the pandemic?

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Psoriatic arthritis and the Coronavirus - How are you reacting to the pandemic?

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painy1989

02/04/2020 at 11:50

painy1989

Last activity on 01/12/2022 at 16:58

Joined in 2020

10 comments posted | 5 in the Psoriatic arthritis Forum

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I saw the discussion on methotrexate and the coronavirus, but as I'm not on that I thought I would create this one. :) How are you all coping?

I had a nasty respiratory infection in January that I've been trying to recover from so they took me off my biologic and put me on antibiotics. It's been hell without my medication but I'm struggling through and self-isolating. I was supposed to see my doctor a week ago but the appointment got cancelled.

Have you all been in touch with your doctor? Have any tips for dealing with all this?

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Jillybean29

08/08/2020 at 09:42

Jillybean29

Last activity on 30/01/2021 at 12:22

Joined in 2018

7 comments posted | 7 in the Psoriatic arthritis Forum

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@Starke yeah as an autoimmune disease it is already compromised I think the arthritis itself can reduce your white cell count that helps fight infections etc. I have PsA which seems to have reduced my red cells, every few months back on the iron tabs at one point iron was down to 2 so had an infusion and then started b12 jabs which has made a world of difference!! Cant imagine the last 9yrs without meds of any kind or doing lock down with an infection on top!! Hope you are all well now x

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Jillybean

Psoriatic arthritis and the Coronavirus - How are you reacting to the pandemic? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/psoriatic-arthritis-and-the-coronavirus-how-are-you-reacting-to-the-pandemic-3145 2020-08-08 09:42:52

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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