Support groups, useful or not?

43 views
0 support
5 comments

maddoglady

28/01/2017 at 09:56

Good advisor

maddoglady

Last activity on 04/01/2023 at 12:00

Joined in 2016

109 comments posted | 29 in the Living with breast cancer group

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Who out there has used a support group, online forums or in person by attending meetings? If you have how useful did you find the experience? From my own perspective when I was first diagnosed I was bombarded with letters, leaflets and phone calls telling me how I should feel and what I should do, how I should react at any given stage in the process. I didn't find it helpful or useful, most of the time it was downright annoying, always the implication has been that it isn't possible to cope by oneself! Even the treatment set up is geared up so everyone sits crammed in together to share their experience. In the UK there is the specialist nurse, McMillan, Breast Cancer Care to name but a few.

All comments

Courtney_J

Community manager

04/03/2022 at 12:11

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 39 in the Living with breast cancer group

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello ladies, how are you doing?

I thought I would kick off this discussion created by @maddoglady because I think it's an interesting thought.

Have any of you turned to online or in-person support groups? Have you found them helpful? Can you relate to the feeling of being overwhelmed or bombarded by information? What do you think?

@Tartantulips @Kerry-ac @Mary5022 @RoxyEvans @Modesitt @Pcaroline @PoppyShiloh @KymPaterson @Jedbear @Evey1974 @Deirdre70 @Nixxii @Sarahbla @Coralis59 @Cassiekins @Kathee @Melo28 @fefe333 @cag201

Take care,

Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Support groups, useful or not? https://www.carenity.co.uk/forum/other-discussions/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-04 12:11:15

Cassiekins

04/03/2022 at 14:53

Cassiekins

Last activity on 11/02/2023 at 14:11

Joined in 2021

3 comments posted | 3 in the Living with breast cancer group

Rewards

Explorer

View profileView Add a friendAdd Write

@maddoglady

Support groups, useful or not? https://www.carenity.co.uk/forum/other-discussions/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-04 14:53:31

Wozeywifey

10/03/2022 at 21:26

Wozeywifey

Last activity on 21/10/2022 at 10:50

Joined in 2017

5 comments posted | 2 in the Living with breast cancer group

Rewards

Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hi,

I subscribed to a few forums on Facebook which I found very helpful. Mainly because I was able to ask about wigs as the wig clinic stopped coming to the hospital due to the pandemic so I was left with nothing.

The ladies in the group were really supportive and one even sent me a wig they no longer needed. Some things can be a bit frightening especially when you know someone and then sadly they pass away, so I guess that’s the sobering reality of our condition.

I had no support from the BCN’s. Because I went through my treatment during covid not even Macmillan was available. It was a very difficult time to go through treatment.

Jee x

See the signature

wozeywifey 💪💪💪💪💪

Support groups, useful or not? https://www.carenity.co.uk/forum/other-discussions/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-10 21:26:35

Close all

See the responses

bc123456

19/10/2022 at 02:02

Good advisor

bc123456

Last activity on 19/10/2022 at 01:51

Joined in 2016

33 comments posted | 23 in the Living with breast cancer group

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Wozeywifey I also turned to facebook. There is a group for everything! I also used it to ask for recommendations, I believe in word of mouth marketing. Thats why I like influencers, but not the paid ones. I like the girls sharing their lives. While I don't know them personally, I feel connected. I am bit shy, especially with my cancer, so the virtual setting for me is perfect.

Support groups, useful or not? https://www.carenity.co.uk/forum/other-discussions/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-10-19 02:02:16

Hide the responses

Wozeywifey

19/10/2022 at 10:57

Wozeywifey

Last activity on 21/10/2022 at 10:50

Joined in 2017

5 comments posted | 2 in the Living with breast cancer group

Rewards

Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I can’t say I found Macmillan or Maggies helpful for the emotional side of things, but I did join a few groups on Facebook and I just jumped in when I had a question. I wasn’t bombarded with these groups. They were there if I needed them so for me I found these very helpful. It also didn’t help that all the services you say there is, we’re not available during covid when I went through my treatment so I actually felt very lonely.
good luck with your journey xx

See the signature

wozeywifey 💪💪💪💪💪

Support groups, useful or not? https://www.carenity.co.uk/forum/other-discussions/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-10-19 10:57:35

Support groups, useful or not?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

Articles to discover...