Back

Patients Breast cancer

long wait for radiotherapy

255 views
12 times supported
22 comments

jeannie

29/01/2020 at 21:26

jeannie

Last activity on 03/04/2020 at 11:44

Joined in 2020

2 comments posted | 2 in the Breast cancer Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I am now post mastectomy 8 weeks. I went for what I thought was assessment for radiotherapy was told they couldn't start as I hadn't had a bone scan .also my surgeon hadn't started me on oestragen blocking meds , the care I have had has been very disjointed

All comments

Go to the last comment

Margaret1

18/02/2020 at 10:30

Good advisor

Margaret1

Last activity on 16/10/2024 at 17:44

Joined in 2017

89 comments posted | 70 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

Have you asked when the scan will be and when you start the tablets? They should have planned treatment with - operation- tablets- scan - radiotherapy. You need to press them for dates and times.

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-18 10:30:54

bc123456

21/02/2020 at 12:17

Good advisor

bc123456

Last activity on 19/10/2022 at 01:51

Joined in 2016

33 comments posted | 23 in the Breast cancer Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

I agree, press for answers and take someone else with you to help you remember the responses. Take down names too if you can, it helps hold them accountable.

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-21 12:17:06

Helen67

27/02/2020 at 07:35

Helen67

Last activity on 26/08/2022 at 13:32

Joined in 2020

6 comments posted | 6 in the Breast cancer Forum

Rewards

Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

P.s had results Friday im her2 positive appantley they knew this in the beginning from blood tests. Now this means i hav e to have chemotherapy and radiotherapy and hercepten treatment as well. !! The breast nurse specialist told me in the beginning i woukdnt need both as its a small opp and they caught it earlry. But my surgon said the nurse was wrong to of told that. Its what they call a primary cancer grade 2 invasive ductal cancer and can spread . Feel so lost now all my plans are gone out the window now . Sat here no sleep for the last few weeks well little bits . Crying feel so alone and scarred . Sorry

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-27 07:35:20

Margaret1

27/02/2020 at 17:57

Good advisor

Margaret1

Last activity on 16/10/2024 at 17:44

Joined in 2017

89 comments posted | 70 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

Ok Helen let’s look at the positive. It is primary cancer grade two - there could be a lot worse as in Grade three or four.

i had triple negative grade two but a three in the two because it was triple negative. This means I had to have chemotherapy and radiotherapy. Yes it is not a pleasant six months you have ahead of you but once the treatment is finished that should be it. You will be having chemo I presume because your cancer is not hormonal.

i live by myself - I had the support of two sisters and friends but at times you do feel alone and frightened. That is bound to happen. Set yourself targets for the day - small ones - and get through the treatment. Gradually you will begin to feel once again that there is enjoyment in life and be proud with every step you take. You are not alone. All best wishes on your journey.

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-27 17:57:16

Margaret1

27/02/2020 at 17:59

Good advisor

Margaret1

Last activity on 16/10/2024 at 17:44

Joined in 2017

89 comments posted | 70 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

It is fine to cry- just remember to smile too at little things.

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-27 17:59:03

Michael_B

Community manager

28/02/2020 at 11:59

Good advisor

Michael_B

Community manager

Last activity on 25/08/2020 at 17:48

Joined in 2019

204 comments posted | 4 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Helen67 @Margaret1‍ Hello Helen67, thank you for your comment and I'm sorry to hear you're feeling so lost. The community is here for you, and please post an update from time to time to let us know how you are doing.

Margaret1, thank you for your encouraging words. What did you do to stay positive?

See the signature

Michael_B, Community Manager, Carenity UK

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-28 11:59:13

Margaret1

29/02/2020 at 19:48

Good advisor

Margaret1

Last activity on 16/10/2024 at 17:44

Joined in 2017

89 comments posted | 70 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

I was told by my consultant that the advice to stay positive is not good advice. This is because everybody at times feels down and everybody at times feels positive. This is natural and to pressurise yourself in to thinking that you must be positive all the time is wrong. Try to focus on the simple things - getting through that day- walking so far- even if only to the bottom of the garden path- look at the blossom- read some info - I even did an on line course - concentrated on feeding the cat - and doing big jobs like changing the bed - in stages even on different days some times. Concentrate on the small things of life and as I said- be kind to yourself.

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-29 19:48:29

Helen67

29/02/2020 at 22:55

Helen67

Last activity on 26/08/2022 at 13:32

Joined in 2020

6 comments posted | 6 in the Breast cancer Forum

Rewards

Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

Thanks margaret . ... ive meeg with my surgon on friday im having 6 sessions of chemotherapy one every 3 weeks also hercepten then 15 days of radiotherapy hormone tablets for 5 to 10 years ....so much going on still no date yet when to start x

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-02-29 22:55:37

Oakville17

05/03/2020 at 08:37

Oakville17

Last activity on 26/07/2020 at 11:15

Joined in 2020

3 comments posted | 3 in the Breast cancer Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I was diagnosed with grade 3 primary breast cancer in Oct 2019. Had a lumpectomy Nov 6th, biopsy showed not in lympnodes, they recommend I have 6 sessions of chemo, which I decided to take, first session I ended up with sepsis, in hospital for 5 days, went for second round of chemo, quess what, got sepsis again in hospital for 7 days with 22 bags of antibiotics drips. The oncologist sister said, the negatives are out weighing the benefits, my body couldn’t take another sepsis. Had to stop the chemo. My radatation starts on Monday. I will keep you updated.

See the signature

P O’HARE-Rennie

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-03-05 08:37:43

Michael_B

Community manager

05/03/2020 at 10:06

Good advisor

Michael_B

Community manager

Last activity on 25/08/2020 at 17:48

Joined in 2019

204 comments posted | 4 in the Breast cancer Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer
Friend

View profileView Add a friendAdd Write

@Helen67‍ @Oakville17‍ Hello Helen67 and Oakville17, thank you both for sharing your stories and keeping us updated. Wishing you all the best for your treatments. Please keep us filled in on how you are feeling in the following weeks.

Take care,

Michael

See the signature

Michael_B, Community Manager, Carenity UK

long wait for radiotherapy https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/long-wait-for-radiotherapy-3029 2020-03-05 10:06:13

Members are also commenting on...

Articles to discover...

19/10/2023 | News

Why is Supportive Care Essential during Breast Cancer Treatment?

10/10/2023 | Testimonial

Paget's disease of the nipple: "Don't let waiting for a diagnosis deplete your reserves!"

16/11/2022 | Testimonial

Multiple sclerosis and breast cancer: "My care has been great!"

29/10/2022 | Testimonial

Breast Cancer: "I may have cancer, but this cancer does not have me"

04/10/2018 | News

Telling patients to 'fight' cancer puts them under pressure

21/05/2018 | News

Lung cancer destroyed with tea leaf nanoparticles

04/02/2019 | News

World Cancer Day: Facts and Insights!

18/01/2018 | Testimonial

Patient interview - 15 radiotherapies for breast cancer

long wait for radiotherapy

All comments

Give your opinion

What do you think about the Carenity Forum and community?

What are your expectations from Carenity and what would you like to see in the future?

How were you diagnosed?

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...