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Neurofibromatosis Type 1 with Cutaneous Neurofibromas Forum

  •  13 members
  •  33 discussions

What are the symptoms of neurofibromatosis type 1 with skin tumours? How to get the right diagnosis? What are the treatments that fight the disease? Join our forum and our discussions!

Medical fact sheet

Neurofibromatosis Type 1 with Cutaneous Neurofibromas

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Living with a rare disease
Living with skin conditions

 Living with skin conditions

How do you deal with how others see you and your skin condition?

avatar LifeDelineator

avatar Becķy-3

avatar Trvlr1

 Living with skin conditions

Does stress have effects on your skin?

avatar Polina.K

 Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Heridana

avatar JimboWombo

avatar lawissa

 Living with skin conditions

My skin is worse in the winter-is yours?

avatar Glencairn

avatar Becķy-3

avatar Rahul.R

 Living with skin conditions

Keeping your mental health in check

avatar Rahul.R

avatar Becķy-3

 Living with skin conditions

Recommendations for urticaria treatment?

avatar Berthe.N

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar unhappy

 Living with skin conditions

Eczema - How to cope with scratching?

avatar george43

avatar Becķy-3

avatar Karlsmum

 Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar CerysNorth

avatar Poppyh91

avatar Courtlouiselee

 Living with a rare disease

Living with Usher syndrome: Share your experience!

avatar faroes

avatar Courtney_J

 Living with skin conditions

Burning feeling on my neck and face, especially in winter - Have you been through this?

avatar Tontnella

avatar Courtney_J

 Living with skin conditions

Are there any alternatives to steroid creams to treat eczema flare-ups?

avatar Mishb94

avatar DougieMcCullough

avatar Courtney_J

 Living with skin conditions

Red, sore inflamed rashes on abdomen - Has anyone else had this?

avatar AngelaH

avatar ItCHY!!!***

 Living with skin conditions

Have you tried Methotrexate for atopic dermatitis?

avatar DeanH1988

avatar jaybelevee

avatar Courtney_J

 Living with skin conditions

My seborrheic eczema is affecting my mental health

avatar Johanna

avatar Thedoc83

avatar Courtney_J

 Living with skin conditions

Topical steroid cream for eyelids and eye health: Does it work?

avatar Elizabeth12

avatar niki10

avatar Courtney_J

 Living with skin conditions

Flare ups making it difficult to move and impacting my mental health

avatar Johanna

avatar Courtney_J

 Living with skin conditions

Welcome to the skin conditions group! Come say "Hello"!

avatar Rainbow195757

avatar DeanH1988

avatar Carl_B

 Living with skin conditions

Eczema flare-up on forehead, eyes and hands: Any advice?

avatar amygray

avatar Cazz2008

avatar Dancingqueen84

 Living with skin conditions

Baby and toddler eczema: Any advice?

avatar DeanH1988

avatar Courtney_J

avatar Jojoseph

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