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Bowel urgency, incontinence and MS: Have you experienced this?

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JayneMason

27/10/2020 at 17:47

JayneMason

Last activity on 28/01/2023 at 18:55

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Unsure of how things will go

Sometimes I think it's better to talk to fellow Ms'ers about things will it be possible to get advice on incontinence of the bowels

This is so embarrassing , I get the urge/feeling I want to open my bowels and then I can't control them

Any help please????

Appreciated VERY much ThanksXx p

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Courtney_J

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28/10/2020 at 15:53

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Courtney_J

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@JayneMason Hello JayneMason, thank you for opening this discussion and sharing what you've been dealing with. How did your appointment go?

Hello members, how are you today? Have you ever experienced bowel urgency and/or incontinence in parallel with your MS? How did you handle it? Do you know if it was caused by MS itself or the treatments?
@Bern50‍ @Zombieapplebaby‍ @Hezza21‍ @Meggie333‍ @Oliviac09‍ @182614‍ @Diva360‍ @DavidMacRae‍ @vonnywonkie‍ @Carol50‍ @Granmarshall‍ @Barbershop19‍ @NicLiv‍ @ANGIE.‍ @Essben‍ @Scottydog‍

Feel free to share your thoughts and experiences here, we're all here to help and support one another!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Bowel urgency, incontinence and MS: Have you experienced this? https://www.carenity.co.uk/forum/multiple-sclerosis/living-with-multiple-sclerosis/neurology-telephone-consultation-appointment-t-3825 2020-10-28 15:53:46

Miss.MS

29/10/2020 at 15:49

Miss.MS

Last activity on 29/10/2020 at 15:41

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@JayneMason Yes I've started having some bowel issues as well. My specialist said it was the medicines I'm taking. Maybe it's that for you as well? How was your appointment?

LindaBlacker

30/11/2020 at 13:46

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I once had an accident wished I could vanish felt so embarrassed. Now I take an imodium before I leave my home. Better to be safe than sorry.

Susiek

30/11/2020 at 14:09

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Susiek

Last activity on 17/11/2024 at 18:28

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These stories are very familiar i too don't get much notice when i need to go i have increased my fluid intake which has helped but my carers now know the routine and are good because sometimes i get very frustrated when i want to go but can't i try not to focus on my bowels as i want to be in control not them (sometimes it's hard) keep well everybody 🌈

LindaBlacker

02/12/2020 at 14:27

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It's difficult focusing on my bowel when it's totally unpredictable. If I take medication to slow down my bowel when I go out. My bowel is sluggish for days. I'd love to hear your views on this matter. It's difficult being in a new relationship with this problem. Even though my fiancee has irritable bowel. We end up laughing about the situation as theres nothing we can do

KeithDB

07/12/2020 at 16:21

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Last activity on 13/05/2021 at 07:45

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I've had a couple of embarrassing moments. Part of my plan is always to know where my emergency loo is. I had a minor panic when I had to board a light aircraft for part of a particular journey - no loos there!

Pretty sure it is MS related.

Courtney_J

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08/12/2020 at 11:11

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Courtney_J

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Hello everyone, thank you for creating and participating in this discussion! emoticon cute

@JayneMason‍ How are you feeling? Were you able to speak with your neurologist? Were they able to provide any clarity on this for you?

Take care,
Courtney

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LindaBlacker

22/12/2020 at 15:19

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I have secondary ms yes incontinence is part and parcel of ms. I've had an accident myself luckily for me I got home just in time. Merry xmas happy 2021

LindaBlacker

04/01/2021 at 13:16

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Well hello everyone happy new year. I find ms unpredictable. Alas it's like most parts of my life. I take the ups with the downs quite well. Having had ms forty years helps. To me ms is normal. I've had ms more of my life than not. Hopefully this vaccine wont be too long. Weve enough to worry about. I'm a fighter now it works for me. No point getting down. Take care God Bless you all

LindaBlacker

06/01/2021 at 18:40

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I bought a key for most toilets I can use when the loos are closed feel safer as long as I can locate the loos before I set off.

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