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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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LizziB

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23/08/2022 at 11:42

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LizziB

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Last activity on 02/04/2024 at 00:46

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Hello everyone,

I hope you are doing well 😊

Throughout their care pathway, patients and caregivers may need information and digital solutions to better cope with the metastatic breast cancer consequences. So, let's talk about it together!

What types of digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) did you (or the patient) receive for your (or the patient’s) metastatic breast cancer?
Where do you (or the patient) look at when you (or the patient) seek for new digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) for metastatic breast cancer?
Which information would you (or the patient) need on metastatic breast cancer?

Do not hesitate to share your experience and advice, we are here to exchange and support each other!

Take care,

Lizzi from the Carenity Team

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LizziB

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30/11/2022 at 13:45

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LizziB

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Last activity on 02/04/2024 at 00:46

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280 comments posted | 35 in the Breast cancer Forum

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Hi everyone,

How are you today?

To make sure you are able to find this discussion, I will tag you. Don't hesitate to share your thoughts and experiences about digital solutions.

@Lilyb1 @UkerDot @savvypatient4patients @Stephanie1 @Lulu61 @Cassiekins @Audreybarber @Caegarwgirl @Gillyt @dawnselby @JanJanx @DeniseMcginty

What type of solutions do you use? Where do you look for these solutions? What information are you looking for?

Let's share!

Take care,

Lizzi

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Lizzi

What are the needs in terms of digital solutions and information for people with metastatic breast cancer? https://www.carenity.co.uk/forum/breast-cancer/living-with-metastatic-breast-cancer/what-are-the-needs-in-terms-of-digital-solutions-and-information-for-people-with-metastatic-breast-cancer-4787 2022-11-30 13:45:49

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TeaTime22

05/12/2022 at 00:23

TeaTime22

Last activity on 06/05/2024 at 20:04

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10 comments posted | 9 in the Breast cancer Forum

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Hi @LizziB

I don't really like digital groups, I am more of an in-person type. I like the energy from others. I obviously used google a bunch for research. I also got an app, My Cancer Coach, to track appointments, medicine, etc. It was helpful because it suggested questions to ask my doctor and some were ones I would not have thought of on my own.

LizziB

Community manager

13/01/2023 at 12:43

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LizziB

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Last activity on 02/04/2024 at 00:46

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280 comments posted | 35 in the Breast cancer Forum

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Hi @TeaTime22

Thank you for sharing your experiences. I will tag the other members to see if they have any thoughts or experiences they would like to share.

@AngeliqueChampion @Dragon1404 @Soomeyrals @HelenWilliams @Maggie1954 @Tiny17 @Maryhighfield @Lilyb1 @UkerDot @Stephanie1 @Lulu61 @Cassiekins @Audreybarber @Caegarwgirl @Gillyt @dawnselby @JanJanx @DeniseMcginty

Please respond by clicking the green "comment on the discussion" button. You can refer to the initial questions and respond freely.

Take care,

Lizzi

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Lizzi

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What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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