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Support groups, useful or not?

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maddoglady

28/01/2017 at 09:56

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maddoglady

Last activity on 04/01/2023 at 12:00

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109 comments posted | 29 in the Breast cancer Forum

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Who out there has used a support group, online forums or in person by attending meetings? If you have how useful did you find the experience? From my own perspective when I was first diagnosed I was bombarded with letters, leaflets and phone calls telling me how I should feel and what I should do, how I should react at any given stage in the process. I didn't find it helpful or useful, most of the time it was downright annoying, always the implication has been that it isn't possible to cope by oneself! Even the treatment set up is geared up so everyone sits crammed in together to share their experience. In the UK there is the specialist nurse, McMillan, Breast Cancer Care to name but a few.

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Courtney_J

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04/03/2022 at 12:11

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Courtney_J

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Last activity on 13/10/2022 at 16:47

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1,280 comments posted | 39 in the Breast cancer Forum

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Hello ladies, how are you doing?

I thought I would kick off this discussion created by @maddoglady because I think it's an interesting thought.

Have any of you turned to online or in-person support groups? Have you found them helpful? Can you relate to the feeling of being overwhelmed or bombarded by information? What do you think?

@Tartantulips @Kerry-ac @Mary5022 @RoxyEvans @Modesitt @Pcaroline @PoppyShiloh @KymPaterson @Jedbear @Evey1974 @Deirdre70 @Nixxii @Sarahbla @Coralis59 @Cassiekins @Kathee @Melo28 @fefe333 @cag201

Take care,

Courtney

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Courtney_J, Community Manager, Carenity UK

Support groups, useful or not? https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-04 12:11:15

Cassiekins

04/03/2022 at 14:53

Cassiekins

Last activity on 11/02/2023 at 14:11

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3 comments posted | 3 in the Breast cancer Forum

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@maddoglady

Support groups, useful or not? https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-04 14:53:31

Wozeywifey

10/03/2022 at 21:26

Wozeywifey

Last activity on 21/10/2022 at 10:50

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5 comments posted | 2 in the Breast cancer Forum

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Hi,

I subscribed to a few forums on Facebook which I found very helpful. Mainly because I was able to ask about wigs as the wig clinic stopped coming to the hospital due to the pandemic so I was left with nothing.

The ladies in the group were really supportive and one even sent me a wig they no longer needed. Some things can be a bit frightening especially when you know someone and then sadly they pass away, so I guess that’s the sobering reality of our condition.

I had no support from the BCN’s. Because I went through my treatment during covid not even Macmillan was available. It was a very difficult time to go through treatment.

Jee x

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Support groups, useful or not? https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-03-10 21:26:35

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bc123456

19/10/2022 at 02:02

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bc123456

Last activity on 19/10/2022 at 01:51

Joined in 2016

33 comments posted | 23 in the Breast cancer Forum

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@Wozeywifey I also turned to facebook. There is a group for everything! I also used it to ask for recommendations, I believe in word of mouth marketing. Thats why I like influencers, but not the paid ones. I like the girls sharing their lives. While I don't know them personally, I feel connected. I am bit shy, especially with my cancer, so the virtual setting for me is perfect.

Support groups, useful or not? https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-10-19 02:02:16

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Wozeywifey

19/10/2022 at 10:57

Wozeywifey

Last activity on 21/10/2022 at 10:50

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5 comments posted | 2 in the Breast cancer Forum

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I can’t say I found Macmillan or Maggies helpful for the emotional side of things, but I did join a few groups on Facebook and I just jumped in when I had a question. I wasn’t bombarded with these groups. They were there if I needed them so for me I found these very helpful. It also didn’t help that all the services you say there is, we’re not available during covid when I went through my treatment so I actually felt very lonely.
good luck with your journey xx

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wozeywifey 💪💪💪💪💪

Support groups, useful or not? https://www.carenity.co.uk/forum/breast-cancer/living-with-breast-cancer/support-groups-useful-or-not-1573 2022-10-19 10:57:35

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