WAHA: What do you think about your treatment?

I don't take any treatment for warm Agglutinin I also have cold Agglutinin disease for which I take 5 mg of folic acid daily. My haematologist has never discussed warm Agglutinin with me. And I worry that the amount of clothing I have to wear to stop me turning blue or lose feeling in extremities will have an adverse effect on the warm agglutinins?

@Jopreston Oh that's interesting that you have a both a cold and warm blood disorder. I hope you don't suffer too much from either!

I'm currently on a steroid for mine and besides the fact that I've blown up a bit from it, I think it's been helping.

@Chaszzz what about you?

Hi ,

I'm currently on steroids, folic acid and currently having rituixmab treatment. I was diagnosed 6 months ago been in hospital twice so far with this and in those 6months had 15 weeks on sick from work. The fatigue and breathless is driving me crazy and praying on my mind regarding returning back to work once sick note runs out