Home
Share
Forum
Spasticity Forum
Living with spasticity
Spasticity treatments - Opinions, experiences, advice

Back

Patients Spasticity

Spasticity treatments - Opinions, experiences, advice

179 views
2 times supported
11 comments

Margarita_k

Community manager

Edited on 30/08/2017 at 18:15

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 7 in the Spasticity Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Wich is your treatment for spasticity?
Does it work? Do you experience side effects?
Don't forget to share your advice to help others or ask your questions to others.

All comments

Unregistered member

11/08/2017 at 22:44

I have Hypertension and am on treatment. I am also on Statins for high Cholesterol. I am currently being investigated for Paroxysmal Atrial Fibrillation (AF) I do get muscles spasms in my legs since I had my 4th and 5th Spinal surgeries. I put my muscle spasm due to being on Statins but the reason has not been confirmed. I had 14 episodes od AF last year over 4 months period. Then they suddenly stopped. Investigations revealed no known reason. This year I started having some isolated episodes of AF. I am now on the waiting list for Implantable Recordable loop. If any one has the loop implanted, I would love to hear from you.

Thank you

Nineteen_gale

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-08-11 22:44:37

Margarita_k

Community manager

30/08/2017 at 18:13

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 7 in the Spasticity Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Thank you for sharing, @nineteen_gale !

See the signature

Community Manager

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-08-30 18:13:03

Margarita_k

Community manager

14/09/2017 at 15:46

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 7 in the Spasticity Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Don't forget about this discussion

See the signature

Community Manager

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-09-14 15:46:34

Pleasance

25/03/2019 at 12:23

Good advisor

Pleasance

Last activity on 16/05/2023 at 11:23

Joined in 2014

63 comments posted | 5 in the Spasticity Forum

Rewards

Good Advisor
Contributor
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Margarita_k @nineteen_gale I mentioned this in another discussion but I recommend botox for spasticity. My life has very much improved since I started this treatment and I don't have to go to the hospital as often anymore. It has really changed my life!

See the signature

Pleasance

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2019-03-25 12:23:59

Unregistered member

25/03/2019 at 22:01

@Pleasance‍

I‍ do not suffer from Spasticity and am not on any treatment. I have had 5 Spinal surgeries and my Spine is fused from half way down my back to the end. I suffer from night cramps, but not spaticity. I have never heard of Botox treatment for Spasticity. i am glad your life has changed due to the treatment though.

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2019-03-25 22:01:20

Courtney_J

Community manager

10/08/2020 at 12:25

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 6 in the Spasticity Forum

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Hello everyone,

How are you today? Have you seen this discussion? emoticon cute

What treatments have you tried for spasticity? Have they been effective? Have you had any side effects? Has one treatment worked better than another?
@Kadehenry16‍ @Dalrossi‍ @ucollins2003‍ @brianbeecroft‍ @Helencat‍ @Barb71‍ @Zozime‍ @doug61‍ @Justybusty‍ @Drouthy‍ @Keza2019‍ @Bilko1‍ @Katespear‍ @Wanda15‍ @Jasperhodgkinson‍ @Kipper501‍ @BCuthill1955‍

Feel free to share here!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-10 12:25:24

ladymary

10/08/2020 at 14:51

Good advisor

ladymary

Last activity on 07/08/2023 at 21:39

Joined in 2017

36 comments posted | 4 in the Spasticity Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@Courtney_J I've just been started on gabapentin and it's been helping. I'm interested in botox though, mainly just out of curiosity, not necessarily for me as I'm new to this. It's amazing that something that was developed for wrinkles can help people with MS or other conditions!

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-10 14:51:44

LindaBlacker

25/08/2020 at 18:33

Good advisor

LindaBlacker

Last activity on 12/05/2024 at 21:36

Joined in 2020

180 comments posted | 2 in the Spasticity Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Friend

View profileView Add a friendAdd Write

I had a bad relapse about six yrs ago. I was put on gabapentin eight times daily. I could stand up without falling down. Just slept then I went to the bathroom there I fell split my head open. I'd rather suffer a spasm than split my head open. Trying to come off them was a nightmare. Now I understand the word cold turkey not nice at all cheers everyone xx

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-25 18:33:07

Maougna

13/10/2022 at 20:59

Maougna

Last activity on 23/11/2022 at 07:40

Joined in 2022

2 comments posted | 2 in the Spasticity Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Hello , I'm interested to know if anyone has had serious side effects

after botox treatment . My wife had a stroke 15 years ago and her leg

has gradually become more spasticated . She had botox treatment and 10

days after the treatment she had profound muscular weakness all over .

It continues to this day , 4 weeks later . The doctor gave her lots of

tests and can find nothing wrong with her . She has no other symptoms at

all so our conclussion is that its a reaction to the botox treatment

but the specialist who gave her it thinks it isnt . Has anybody out

there had this reaction ?

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2022-10-13 20:59:27

Close all

See the responses

Yank34

Ambassador

20/10/2022 at 16:33

Good advisor

Yank34

Ambassador

Last activity on 19/11/2024 at 18:46

Joined in 2015

291 comments posted | 10 in the Spasticity Forum

17 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

@Maougna Wish I could help you but unfortunately I've never used botox for my MS spasticity. I'm keeping everything crossed that your wife will hopefully regain at least some of her muscle strength back. I'm? wondering if she would be able to access any physiotherapy to help with this situation? Sending my very bst wishes to you both. Ann x

See the signature

Ann

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2022-10-20 16:33:06

Hide the responses

Members are also commenting on...

Unregistered member

21/11/2016 at 15:19

I had a hip replacement 16 months ago due to osteoarthritis. I can honestly say it was the best decision I have ever made. Yes I was not looking forward to everything post op, but I am now 100% mobile and after not being able to walk any distances I now enjoy walking again and I've managed to lose 2.5 stones. Totally pain free and I've had lots of comments about how much happier I look - my face was obviously showing my pain. If you have any questions please ask!

See the best comment

Unregistered member

21/11/2016 at 15:19

See the best comment

Articles to discover...

17/06/2024 | News

Spasticity: Everything you need to know!

06/02/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

07/05/2018 | Advice

Fifteen percent of osteoporosis patients who take 'drug holidays' suffer bone fractures

23/11/2024 | News

Insomnia: How can you overcome it?

18/11/2024 | News

Drugs and libido: Which treatments can affect your sexual desire?

16/11/2024 | News

Attachment disorders: How do they affect our interpersonal relationships?

08/11/2024 | Advice

Procrastination: Bad habit or a secret self-care strategy?

04/11/2024 | News

Bloating: Everything there is to know!