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Spasticity treatments - Opinions, experiences, advice

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Margarita_k

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Edited on 30/08/2017 at 18:15

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Margarita_k

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Last activity on 07/10/2020 at 11:39

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Wich is your treatment for spasticity?
Does it work? Do you experience side effects?
Don't forget to share your advice to help others or ask your questions to others.

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Unregistered member

11/08/2017 at 22:44

I have Hypertension and am on treatment. I am also on Statins for high Cholesterol. I am currently being investigated for Paroxysmal Atrial Fibrillation (AF) I do get muscles spasms in my legs since I had my 4th and 5th Spinal surgeries. I put my muscle spasm due to being on Statins but the reason has not been confirmed. I had 14 episodes od AF last year over 4 months period. Then they suddenly stopped. Investigations revealed no known reason. This year I started having some isolated episodes of AF. I am now on the waiting list for Implantable Recordable loop. If any one has the loop implanted, I would love to hear from you.

Thank you

Nineteen_gale

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-08-11 22:44:37

Margarita_k

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30/08/2017 at 18:13

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Margarita_k

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Thank you for sharing, @nineteen_gale !

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Community Manager

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-08-30 18:13:03

Margarita_k

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14/09/2017 at 15:46

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Margarita_k

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Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2017-09-14 15:46:34

Pleasance

25/03/2019 at 12:23

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Pleasance

Last activity on 16/05/2023 at 11:23

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@Margarita_k @nineteen_gale I mentioned this in another discussion but I recommend botox for spasticity. My life has very much improved since I started this treatment and I don't have to go to the hospital as often anymore. It has really changed my life!

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Pleasance

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2019-03-25 12:23:59

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25/03/2019 at 22:01

@Pleasance‍

I‍ do not suffer from Spasticity and am not on any treatment. I have had 5 Spinal surgeries and my Spine is fused from half way down my back to the end. I suffer from night cramps, but not spaticity. I have never heard of Botox treatment for Spasticity. i am glad your life has changed due to the treatment though.

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2019-03-25 22:01:20

Courtney_J

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10/08/2020 at 12:25

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Courtney_J

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Hello everyone,

How are you today? Have you seen this discussion? emoticon cute

What treatments have you tried for spasticity? Have they been effective? Have you had any side effects? Has one treatment worked better than another?
@Kadehenry16‍ @Dalrossi‍ @ucollins2003‍ @brianbeecroft‍ @Helencat‍ @Barb71‍ @Zozime‍ @doug61‍ @Justybusty‍ @Drouthy‍ @Keza2019‍ @Bilko1‍ @Katespear‍ @Wanda15‍ @Jasperhodgkinson‍ @Kipper501‍ @BCuthill1955‍

Feel free to share here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-10 12:25:24

ladymary

10/08/2020 at 14:51

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ladymary

Last activity on 07/08/2023 at 21:39

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@Courtney_J I've just been started on gabapentin and it's been helping. I'm interested in botox though, mainly just out of curiosity, not necessarily for me as I'm new to this. It's amazing that something that was developed for wrinkles can help people with MS or other conditions!

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-10 14:51:44

LindaBlacker

25/08/2020 at 18:33

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LindaBlacker

Last activity on 18/12/2024 at 18:32

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I had a bad relapse about six yrs ago. I was put on gabapentin eight times daily. I could stand up without falling down. Just slept then I went to the bathroom there I fell split my head open. I'd rather suffer a spasm than split my head open. Trying to come off them was a nightmare. Now I understand the word cold turkey not nice at all cheers everyone xx

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2020-08-25 18:33:07

Maougna

13/10/2022 at 20:59

Maougna

Last activity on 23/11/2022 at 07:40

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Hello , I'm interested to know if anyone has had serious side effects

after botox treatment . My wife had a stroke 15 years ago and her leg

has gradually become more spasticated . She had botox treatment and 10

days after the treatment she had profound muscular weakness all over .

It continues to this day , 4 weeks later . The doctor gave her lots of

tests and can find nothing wrong with her . She has no other symptoms at

all so our conclussion is that its a reaction to the botox treatment

but the specialist who gave her it thinks it isnt . Has anybody out

there had this reaction ?

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2022-10-13 20:59:27

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Yank34

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20/10/2022 at 16:33

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Yank34

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Last activity on 19/11/2024 at 18:46

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@Maougna Wish I could help you but unfortunately I've never used botox for my MS spasticity. I'm keeping everything crossed that your wife will hopefully regain at least some of her muscle strength back. I'm? wondering if she would be able to access any physiotherapy to help with this situation? Sending my very bst wishes to you both. Ann x

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Ann

Spasticity treatments - Opinions, experiences, advice https://www.carenity.co.uk/forum/spasticity/living-with-spasticity/spasticity-treatments-1921 2022-10-20 16:33:06

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