Back

Patients Rheumatoid arthritis

Have you had side effects from methotrexate?

221 views
3 times supported
16 comments

Joanne50

05/06/2019 at 22:51

Joanne50

Last activity on 26/07/2020 at 20:35

Joined in 2017

1 comment posted | 1 in the Rheumatoid arthritis Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Hi im Jo. Ive been on methotrexate injection and cimzia injection for about 2 years now to treat inflammatory arthritis. I also have fibromyalgia and ulcerative colitis. After having a growth removed from my shin 6 weeks ago i have just been diagnosed with Bowens disease. Ive been told people taking methotrexate have a higher risk of skin cancer . I have been told i have to come off my injections for 4 weeks whilst i have treatment but am petrified of the pain coming back. Has anyone experienced this?

All comments

Go to the last comment

PollyP

09/06/2020 at 11:58

Good advisor

PollyP

Last activity on 01/02/2023 at 10:06

Joined in 2016

12 comments posted | 11 in the Rheumatoid arthritis Forum

Rewards

Good Advisor
Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

Hi everyone, I've been on 15mg of oral methotrexate each week for a while now, but my rheumatologist has decided to switch me to methotrexate injections at the same dose to increase the effictiveness and possible decrease side effects.

Has anyone on here also been through this? Did you see any real improvements in effectiveness? Did you side effects go down or did you see more?

Thanks for any feedback x

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-06-09 11:58:30

EmmyJane

18/06/2020 at 18:45

EmmyJane

Last activity on 10/05/2023 at 20:18

Joined in 2020

15 comments posted | 13 in the Rheumatoid arthritis Forum

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

@pollyPP I've only just started methotrexate and I take it orally, so I can't really help you unfortunately. I'd be interested to hear peoples" experiences though on it. So far I haven't had many side effects yet besides a bit of nausea that passes.

See the signature

EmmyJane

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-06-18 18:45:37

EmmyJane

26/10/2020 at 15:41

EmmyJane

Last activity on 10/05/2023 at 20:18

Joined in 2020

15 comments posted | 13 in the Rheumatoid arthritis Forum

Rewards

Contributor
Messenger
Explorer

View profileView Add a friendAdd Write

I thought I'd come back on here for an update I guess. I've been taking my methotrexate tablets for several months now and the pain has gone away. It's been fantastic overall, but something I've been truly struggling with is fatigue. It's been very difficult. I also feel like I've been in a more negative mood since before I started taking it. I don't really recognise myself anymore, I used to be very upbeat and active...

Could this be from the methotrexate or is it from the RA? My low morale worries me a little and I feel guilty for making my loved ones suffer because my chronic fatigue...

See the signature

EmmyJane

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-10-26 15:41:42

Courtney_J

Community manager

26/10/2020 at 15:58

Good advisor

Courtney_J

Community manager

Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 24 in the Rheumatoid arthritis Forum

10 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

@EmmyJane Hello EmmyJane, thank you for keeping us updated on how you're doing on methotrexate. If you haven't seen it already, one our Ambassadors, @richard0804‍, helped us write an article on methotrexate, its use and side effects a few months ago. You may find it helpful: Learn more about methotrexate!

Has anyone else experienced extreme fatigue and mood changes whilst taking methotrexate? If so, how did or do you cope with it?
@yesyes‍ @Rafa76‍ @Juliana‍ @Mairi1956‍ @Scoobysue1‍ @Layton‍ @lizshi‍ @noelynn‍ @JRL1965‍ @dilizjo‍ @MarkOrton‍ @Un4getablefox‍ @Samsung12‍ @Bobbiegirl‍ @Aideen61‍ @nanvanham‍ @Susiemaxwell‍ @earthspirit‍ @Mog789‍

Feel free to share here!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity UK

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-10-26 15:58:09

BoxWood2

29/10/2020 at 10:58

BoxWood2

Last activity on 19/06/2021 at 12:14

Joined in 2017

6 comments posted | 3 in the Rheumatoid arthritis Forum

Rewards

Explorer
Evaluator
Newsfeeder

View profileView Add a friendAdd Write

@Gizzidoggie

Hi sorry to hear you are having problems with diverticulitis and Methotrexate. I too have diverticulosis but fortunately have never suffered any adverse affects from taking Methotrexate. I do take Folic Acid twice a week, always 3 days after Methotrexate and have very few side effects. I still have the occasional flare-up with pain in my hands and shoulders but on the whole my symptoms seem to be well controlled. Ive been on Methotrexate for 3 years now and hoping I may be able to reduce the dose soon. If you are not taking it , perhaps Folic Acid may help you. Worth asking your practitioner.

See the signature

Christine Lackey

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-10-29 10:58:44

Mandy59

07/12/2020 at 13:14

Good advisor

Mandy59

Last activity on 19/11/2024 at 19:23

Joined in 2017

182 comments posted | 16 in the Rheumatoid arthritis Forum

7 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I started methotrexate tablets in 2002 and found it made me feel very ill. Stomach cramping & vomiting. Bruising, nose bleeds, headaches, hair loss & bleeding gums / tooth loss.
ln 2016 l was changed to injections but due to my pain/swelling in my hands l found it hard to administer the injections myself so had to attend the hospital every week for a rheumatology nurse to inject me as my doctors surgery said they were not allowed to do it.
ln 2019 l was given the metoject pen & things are so much easier to inject but l still suffer side effects & if l didn’t have to take it l wouldn’t. Think it’s a horrible drug (if l don’t take it l can’t have biologic infusion)

See the signature

M.Flood

Have you had side effects from methotrexate? https://www.carenity.co.uk/forum/rheumatoid-arthritis/your-opinion-on-rheumatoid-arthritis-treatment/side-effects-of-methotrexate-2847 2020-12-07 13:14:47

Members are also commenting on...

Articles to discover...

09/09/2024 | News

What are the complications of rheumatoid arthritis (RA)?

23/08/2023 | Testimonial

Dietitian Tanya helps the Lupus community to reduce their symptoms with diet and healthy living.

09/06/2023 | News

Etanercept (Enbrel®, Erelzi®, Benepali®): everything there is to know about this drug!

19/04/2023 | Testimonial

Rheumatoid arthritis: “Never stop dreaming!”

28/06/2016 | News

In fibromyalgia, cognitive symptoms are worse than in rheumatoid arthritis

03/10/2018 | Advice

7 tips for sleeping with rheumatoid arthritis

09/05/2016 | Advice

Rheumatoid Arthritis: Risks and Benefits of Chemotherapy Treatments

03/01/2019 | Advice

Photograph Testimonial: Continuing to work with rheumatoid arthritis

Have you had side effects from methotrexate?

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...