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Otezla (apremilast): Side effects, experiences, advice
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JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 6 in the Psoriatic arthritis Forum
6 of their responses were helpful to members
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@cplcharlie Hello,
Thank you for posting, I am sure there are some member son here that can share their experiences with you :)
Here is our fact sheet about otezla which gives information about it's usage.
See the signature
Josephine, Community Manager
Samsara100
Samsara100
Last activity on 17/11/2022 at 08:04
Joined in 2017
1 comment posted | 1 in the Psoriatic arthritis Forum
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Hi,
I am on my 3rd biologic and i have found that it has affected my emotions and moods immensely however, the side effects are tolerable in comparison to life without a biologic.
My GP has prescribed duloxetine which has helped greatly .
I would definitely not stop without exploring all available options .
Good luck.
DebsBowman
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DebsBowman
Last activity on 13/06/2024 at 11:46
Joined in 2018
10 comments posted | 2 in the Psoriatic arthritis Forum
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@Samsara100 I'm on humira 40mg injection ones a week I have a bad tummy most of the time and my mood is verry low my emune system is verry low to I now got liver disease caused by none alcohol liver disease one now I'm a diebec tipe 2
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
Living with psoriatic arthritis
Which joints or parts of your body are affected by psoriatic arthritis? Are both sides affected?
Living with psoriatic arthritis
What is your biggest daily challenge whilst living with psoriatic arthritis?
reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
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cplcharlie
cplcharlie
Last activity on 27/06/2019 at 20:35
Joined in 2015
2 comments posted | 1 in the Psoriatic arthritis Forum
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I thinking of stopping my otezla because of the side effects, ie depression, has anybody done this and are there any withdrawal symptoms.