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Infliximab (Flixabi, Remicade): Side effects, experiences, advice

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Infliximab (Flixabi, Remicade): Side effects, experiences, advice

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Unregistered member

20/01/2020 at 16:10

Hello, my granddaughter was recently diagnosed with psoriasis. She's only in her early 30s. She is on, among other things, Flexabi. Has any else tried this? Is it effective?

Thank you,

Mildred

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Courtney_J

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01/10/2020 at 12:00

Good advisor

Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 14 in the Psoriatic arthritis Forum

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@missmiffet68 Hi missmiffet68, thank you for opening this discussion, I've moved it to our "Treatments for psoriatic arthritis" group for more visibility. How is your granddaughter doing?

If you haven't seen it yet, here is our fact sheet for Flixabi that details some of its uses: FLIXABI

Hi everyone, have you been treated with infliximab for your psoriatic arthritis? Have you tried Remicade or its biosimilar Flixabi more specifically? Has it worked for you? Have you experienced any side effects?
@Sparky62‍ @Smiddy‍ @Bailey‍ @Olive62‍ @Lorrae09‍ @Hayley23‍ @Debbiejane‍ @Layton‍ @macandMilli01‍ @Supernanna26‍ @Nats299‍ @Cheslyn‍ @jkeers‍ @Anna4557‍ @PineappleHead‍ @Whizz30‍ @Lizavery15‍

Feel free to share your experiences here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity UK

Infliximab (Flixabi, Remicade): Side effects, experiences, advice https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/experiences-with-flexabi-3019 2020-10-01 12:00:51

johntyne77

13/10/2021 at 12:40

johntyne77

Last activity on 13/10/2021 at 11:07

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5 comments posted | 4 in the Psoriatic arthritis Forum

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I feel like I have a lot of sinus issues and hot flashes with this one... Has anyone else had that?

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

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