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Patients Psoriatic arthritis

DMARDs

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painy1989

01/12/2022 at 17:02

painy1989

Last activity on 01/12/2022 at 16:58

Joined in 2020

10 comments posted | 5 in the Psoriatic arthritis Forum

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Does anyone here take any DMARDs? My doctor prescribed leflunomide but it's giving me urination issues. They are thinking changing to either sulfasalazine or methotrexate. Has anyone tried these?

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LizziB

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02/12/2022 at 12:36

Good advisor

LizziB

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Last activity on 02/04/2024 at 00:46

Joined in 2022

280 comments posted | 7 in the Psoriatic arthritis Forum

19 of their responses were helpful to members

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Hi @painy1989

How are you today?

I will tag a few members to see if they have experience with the medications you listed.

@Sarahbar @Sam4095 @Sonia1983 @DawnieB @Debz70 @Arthur1234 @Loneshania @Karen1965 @AustinS @Torrie @Nuttree @FionaV @Jenfa69 @Parranquet @HazelWilliams @Jools63 @Alim244 @McCaffs @Chrisk78 @Flossfrack @Jennii @Munchcorn @Kaycee @Jackie1971 @Diamondartcrazy @Thurste10 @Pauloq @Pebs1973 @Mariawallace

Has your doctor prescribed sulfasalazine or methotrexate? Have you tried them? Have you tried leflunomide? How do they compare? What were your side effects?

Take care everyone,

Lizzi

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Lizzi

DMARDs https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/dmards-4897 2022-12-02 12:36:15

Thurste10

Edited on 02/12/2022 at 15:27

Thurste10

Last activity on 02/12/2022 at 15:23

Joined in 2022

1 comment posted | 1 in the Psoriatic arthritis Forum

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Hey,

I started with methotrexate and for the first week or 2 had a couple of side effects mostly just nausea and an iffy stomach unfortunately it didn't work for me so they added sulfasalazine which unfortunately gave me even worse side effects dizziness, iffy stomach, nausea, bad head and also tinitess. I have never tried leflunomide so I can't compare and I went straight onto biologics after that so apologies my answer isn't much help.

Obviously not everybody experiences side effects or will have different levels of side effects so hopefully it works for you.

DMARDs https://www.carenity.co.uk/forum/psoriatic-arthritis/the-treatments-for-psoriatic-arthritis/dmards-4897 2022-12-02 15:26:46

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

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