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Infections, antibiotics, and psoriatic arthritis treatment
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painy1989
painy1989
Last activity on 01/12/2022 at 16:58
Joined in 2020
10 comments posted | 5 in the Psoriatic arthritis Forum
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@Pippa16 Hi,
Yes, this is happening to me now which is why I joined to see if I could find some solutions. I had a major respiratory infection and had to go off biologics. Now my joints are starting to burn and get stiff again. Have you found any way of dulling the pain?
Courtney_J
Community managerGood advisor
Courtney_J
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Last activity on 13/10/2022 at 16:47
Joined in 2020
1,280 comments posted | 14 in the Psoriatic arthritis Forum
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Hello all,
How are you today? Have you seen this older discussion?
Certain treatments for psoriatic arthritis, biologics in particular, while effective for treating the disease, can also make you more vulnerable to developing infections.
Have you experienced any infections while on biologics or other PsA treatments? Have you had to stop your treatment because of it? How do cope when that happens?
@thomco @PaulineRosalyn @Chrisstina @lunalunes @Castlemanmom @Nicwoz74 @MrsMelSerag78 @Ashmcl90 @spooky @chris75last @MarLes @Lindsey.Betteridge1 @Sh1rley @Ktcloggs @JoJo1982 @Randomj1 @Mendesfernandes
Take care,
Courtney
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Courtney_J, Community Manager, Carenity UK
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
Living with psoriatic arthritis
Which joints or parts of your body are affected by psoriatic arthritis? Are both sides affected?
Living with psoriatic arthritis
What is your biggest daily challenge whilst living with psoriatic arthritis?
reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
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Pippa16
Pippa16
Last activity on 15/11/2021 at 16:32
Joined in 2018
3 comments posted | 1 in the Psoriatic arthritis Forum
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Hi, has anyone else had to have antibiotics because of an infection, which then means not having medication for psoriatic arthritis? My old pains are returning. I hope after two weeks that I can now return to my normal meds😏