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Psoriatic Arthritis but no psoriasis, anyone else?
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JosephineO
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JosephineO
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Last activity on 15/07/2024 at 09:21
Joined in 2018
989 comments posted | 6 in the Psoriatic arthritis Forum
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Hi liliOO,
thanks for posting! Hopefully some members will have some advice for you :)
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Josephine, Community Manager
p.adden
p.adden
Last activity on 01/10/2024 at 11:49
Joined in 2019
7 comments posted | 5 in the Psoriatic arthritis Forum
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I am the same I am not troubled with skin problems, like you I have tried everything and nothing works
johntyne77
johntyne77
Last activity on 13/10/2021 at 11:07
Joined in 2020
5 comments posted | 4 in the Psoriatic arthritis Forum
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I'm in the same boat, psoriatic arthritis, but no psoriasis but both my brothers are the opposite. I get injections directly into my finger joints which is where it flares up the most. Hurts like hell, but it helps.
Adnil59
Adnil59
Last activity on 01/10/2024 at 15:29
Joined in 2015
1 comment posted | 1 in the Psoriatic arthritis Forum
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I am on sulfasalazine and paracetamol, heat helps a little. Did have a bad bout of psoriasis about 30 years ago nothing since. I am like you with the pain, Nothing seems to touch it.
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
Living with psoriatic arthritis
Which joints or parts of your body are affected by psoriatic arthritis? Are both sides affected?
Living with psoriatic arthritis
What is your biggest daily challenge whilst living with psoriatic arthritis?
reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
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Lili00
Lili00
Last activity on 27/04/2019 at 09:18
Joined in 2018
1 comment posted | 1 in the Psoriatic arthritis Forum
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I was diagnosed with PsA despite NOT having the skin condition psoriasis. Anyone else??
It is in my foot & the pain is immense. How do you all cope & what pain relief works. Naproxen, tramadol, paracetamol doesn’t touch it!!
thanks