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Psoriatic arthritis and digestive disorders: Have you noticed a link?
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
Living with psoriatic arthritis
Which joints or parts of your body are affected by psoriatic arthritis? Are both sides affected?
Living with psoriatic arthritis
What is your biggest daily challenge whilst living with psoriatic arthritis?
reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
See the best comment
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Somya.P
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Somya.P
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Last activity on 20/12/2024 at 21:29
Joined in 2023
433 comments posted | 1 in the Psoriatic arthritis Forum
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Hello everyone, how are you doing?
Psoriatic arthritis doesn’t just affect joints; it can have body-wide impacts, including on the digestive system. In fact, people with this condition are at a higher risk of developing inflammatory bowel diseases (IBD) like @caldan @Adnil59 @Topaz13 @dibbles @thelicencee @TimboC @LizzyB @domino54 @Lindajean @nanto11 @ETPHONEHOME @Cnugent @shasam @Debsie53 @Moorview @JanD33 @meatloafuk @DeenieBop @sharon123 @breezy1 @Catherine24 @Pauline007 @Magi52 @Sheila2013 @Saltdeangirl @JanjanF @Alyssajayneshae @denton_lisa @Debbieanne @solmask @Shell69 @Kevinhalli @Daisydef @Tempie @Vered53 @bkacklamp123 @Jackki @Craws62 @Jamesy7 @val1609 @Pammymak2005 @Salstar @Anne11 @Dingle @Michelle05/12 @MoyaMac @yellowox1 @Marydonovan @Bambi71 @Bigdaddy @Mossip @Tanya1971 @cookie6 @Letitiamarie63 @Phcvoodoo1 @Shaz71 @elliedarcy @PsAart @p.adden @Carina20 @coryyuen @Fionaboo @NemoWebb @Evansry @Andyoldha. @Ladywolf @Wnesbitt @Karen1977 @lissimore65 @Triciamac28 @Katrinamarie @Missy1967 @Figieu @Paulamccall @Dixeychick @Bennyc @DISMAS @HelenMJames @m.collins08 @Elly435 @Stevenandme123456 @LadyGolfers @Anna4557 @Bufty01 @Hayley23 @Smiddy @Hezfisher @Maria83 @Sh1rley @Joellie @Nicwoz74 @PaulineRosalyn @thomco @LesJ57 @kateheath @TerriSH @Debbie1966 @J4kki7 @Maureen60 @colexelzie
Your insights could provide much-needed support to others struggling with these challenges. Let’s share and learn from one another!
Take care,
Somya from the Carenity Team 🌼