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Your advice for those newly diagnosed with Psoriatic Arthritis

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Courtney_J

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24/04/2022 at 23:55

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Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 14 in the Psoriatic arthritis Forum

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Dear Carenity members,

I'd like to start this new discussion in order to help all those who have recently been diagnosed with psoriatic arthritis.

What would be your advice to those newly diagnosed? What would you recommend to help them cope with the disease on a daily basis?

Do not hesitate to share your own experience, it will be greatly appreciated!

Take care!

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Daisydef

04/07/2022 at 12:25

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Daisydef

Last activity on 17/08/2024 at 20:39

Joined in 2018

66 comments posted | 2 in the Psoriatic arthritis Forum

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Take it a. Day at a time make a diary of your symptoms to show your rheumatologist make sure you allow yourself time to rest after lots of exertion fatigue is very real with this disease and keep moving as much as you can. Swimming is good. Physio is helpful. But most of all be kind to yourself

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s m

Your advice for those newly diagnosed with Psoriatic Arthritis https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/your-advice-for-those-newly-diagnosed-with-psoriatic-arthritis-4569 2022-07-04 12:25:27

Berthe.N

13/07/2022 at 15:41

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Berthe.N

Last activity on 05/10/2022 at 11:29

Joined in 2022

39 comments posted | 1 in the Psoriatic arthritis Forum

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Hello everyone,

How are you today?

I thought I'd revive this discussion and invite members to share their advices with us.

@kateheath @LesJ57 @thomco @PaulineRosalyn @Chrisstina @lunalunes @Castlemanmom @Nicwoz74 @annemarieduncan @MrsMelSerag78 @Ashmcl90 @spooky @chris75last @MarLes @Sh1rley @Lindsey.Betteridge1 @Ktcloggs

Feel free to share with us here!

Take care,
Berthe

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

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