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What is your psoriatic arthritis story? Let's share!

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Courtney_J

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02/07/2020 at 12:26

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Courtney_J

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Last activity on 13/10/2022 at 16:47

Joined in 2020

1,280 comments posted | 14 in the Psoriatic arthritis Forum

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Hello everyone,

How are you today? emoticon cute

What is your psoriatic arthritis story? How and when were you diagnosed? How are you doing now? What medications or treatments have you tried? Feel free to introduce yourself and share your story, your advice or your support here!
@Randomj1‍ @Mendesfernandes‍ @Maria83‍ @Sleepingbeauty‍ @GillH456‍ @Hezfisher‍ @Neilly‍ @Lynz60‍ @Tissonlyme‍ @Zoerice46‍ @Christine6303‍ @SharronSP‍ @Mcmullen‍ @Macpheb234‍ @Sparky62‍ @Smiddy‍ @Bailey‍ @Olive62‍ @Lorrae09‍

Take care,
Courtney

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dadofalad78

02/07/2020 at 14:09

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dadofalad78

Last activity on 07/08/2020 at 15:38

Joined in 2019

10 comments posted | 8 in the Psoriatic arthritis Forum

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@Courtney_J I'm on this site for my son. He was diagnosed late last year after having regular aches and pains and swelling in his hands and other joints. He's in his early twenties so we were shocked. He's been taking methotrexate and it seems to be working for him. It was hard for us being separated in lockdown, but since things have gotten a bit better we finally were able to see him a few weeks ago. If anyone has any advice on how we could best support him, I'm open to hearing it!

What is your psoriatic arthritis story? Let's share! https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/what-is-your-psoriatic-arthritis-story-lets-share-3543 2020-07-02 14:09:35

psorinotsorry

02/07/2020 at 14:57

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psorinotsorry

Last activity on 02/07/2020 at 14:46

Joined in 2019

6 comments posted | 4 in the Psoriatic arthritis Forum

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Hi everyone, I have had psoriasis for 20+ years now, and my psoriatic arthritis developed about 10 years ago. I've been on many different medicines over the years, but for now I'm taking methotrexate. It really has affected my knees and feet and I struggle with stiffness because of it. I hope you all are well.

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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