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Storms and PA

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painy1989

25/07/2022 at 06:06

painy1989

Last activity on 01/12/2022 at 16:58

Joined in 2020

10 comments posted | 5 in the Psoriatic arthritis Forum

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So I remember when I was growing up my grandma would always be able to tell when it was about to storm because "she could feel it in her bones." I've noticed that with my PA, the pain builds and builds during the lead up to a storm and once it starts to rain, my body begins to feel relief. I feel like a human barometer!

Does anyone else notice the intensity of their symptoms changing during storms?

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LizziB

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26/07/2022 at 16:29

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LizziB

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Last activity on 02/04/2024 at 00:46

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280 comments posted | 7 in the Psoriatic arthritis Forum

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Hi @painy1989

There have been tons of hot days and storms recently.

Has anyone else noticed that their body aches more when there is a storm? Do you have relief afterwards? Is it just constant?

Would you like to share about your experiences in different pressure symptoms? @kateheath @LesJ57 @Castlemanmom @JoJo1982 @Hezfisher @Zoerice46 @MrsSmalls @chrissielily @Oscar06 @Geelynn @m.collins08 @thedaplyns @Lainey @Susiepolley @Deborahk

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Lizzi

Storms and PA https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/storms-and-pa-4721 2022-07-26 16:29:40

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

See the best comment

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Storms and PA

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