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Advice about our medications during the lockdown?

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Goldilox

07/05/2020 at 11:46

Goldilox

Last activity on 01/11/2020 at 13:31

Joined in 2018

9 comments posted | 3 in the Psoriatic arthritis Forum

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Im on methotrexate amd cosentyx and because this lowers immune i stopped 7 weeks ago and now my psroiatic arthritis has flared up bad im bery scared now too restart iv been told too sheild and have been for 8 weeks now but im not sure what too do my daughter hass too goboit too get our shopping so am bery worried in case i get covid my brother died from it 4 weeks ago althoigh iv not had any contact with anyone im still very very worried anyone else in same boat or advice my consultant said take half dose methotrexate imstead full dose and restart coesentyx bit he said its all about the pros and cons and if im isolated im not at any risk but like i said my daughtets have too go oit once a month for shoppimg i really dont no what too do ?

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Starke

07/08/2020 at 15:35

Starke

Last activity on 07/08/2020 at 15:26

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6 comments posted | 6 in the Psoriatic arthritis Forum

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@Goldilox Hi Goldilox, I didn't see this when you posted or I would have answered you! Did you stop your medicines because of your doctor's advice? How are you doing? Are you still in a flare?

Advice about our medications during the lockdown? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/medication-3313 2020-08-07 15:35:01

Goldilox

07/08/2020 at 18:06

Goldilox

Last activity on 01/11/2020 at 13:31

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9 comments posted | 3 in the Psoriatic arthritis Forum

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Starke hi ,i did but i had a rethink about what someone put about if i caught covid my body would have too fight that ahainst me not taking my meds so i restarted after 2 months im back on them and doung fine thankfully, hope you and everyone else are all doing well and staying safe 😁

Advice about our medications during the lockdown? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/medication-3313 2020-08-07 18:06:36

Jillybean29

08/08/2020 at 10:01

Jillybean29

Last activity on 30/01/2021 at 12:22

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7 comments posted | 7 in the Psoriatic arthritis Forum

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@Goldilox Glad you are on the up, I am on suplfasalazine, naproxen and b12 jabs, i was told not to stop but to follow the shielding letter. I couldnt face the thought of a flare up in a house with 4 kids so just done our best to get deliveries and only do chemist runs. It s very weird being out and about now I still tend to do as little as possible in shops and spend as much time at caravan as poss! Sorry for the loss of your brother xx

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Jillybean

Advice about our medications during the lockdown? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/medication-3313 2020-08-08 10:01:45

Goldilox

08/08/2020 at 13:28

Goldilox

Last activity on 01/11/2020 at 13:31

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9 comments posted | 3 in the Psoriatic arthritis Forum

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Jillybean 29 thank you and i no its hard too make the right decision when you hear so many different takes on this virus and the meds we take i think i just got too scared theres been lots conflicted advice but im getting there thank you and i hope you and you're family enjoy this beautiful weather and stay safe xx

Advice about our medications during the lockdown? https://www.carenity.co.uk/forum/psoriatic-arthritis/living-with-psoriatic-arthritis/medication-3313 2020-08-08 13:28:02

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.

Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.

I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!

I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.

Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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reikiboo64

23/11/2020 at 18:24

@Courtney_J

Well where do I start!

I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.

Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.

x..

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Advice about our medications during the lockdown?

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