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Medical appointments
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I see my consultant roughly every 6 months and the nurse about 3 monthly for my psoriatic arthritis.
I get my medication issued every two months which consists of 4 different medications and pain killers on top if needed.
Margarita_k
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Margarita_k
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Last activity on 07/10/2020 at 11:39
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1,195 comments posted | 4 in the Psoriatic arthritis Forum
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Hi @Dee237, thanks for sharing!
Does having an appointment with your consultant every 6 months seem to be sufficient for you? Or do you think it would be better if you saw him more (less) often?
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I would like more frequent appointments but the clinic is heavily booked. Able to contact a nurse in between if I have any major issues to what out come I do not know as have never done this.
lesjames
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lesjames
Last activity on 27/10/2022 at 16:15
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13 comments posted | 1 in the Psoriatic arthritis Forum
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My appointments are supposed to be every 6 months but they are always nearing 12 when Iget seen. I seem to have been put in the too difficult box. I have had more information from the ophthalmologist and hope the dermatologist than the Rheumatologist. I have also seen an Endocrinologist who confirmed that I am suffering Adrenal insufficiency, although nothing has been done. The only information I have been given is that the steroid dose is to high and I need to reduce them down. I am currently on 10mg also 20mg of methotrexate and I have been taken off Azathioprine 150mg. My symptoms are returning with each drop in steroids, however no help or advice is forthcoming from my rheumatologist.
Sorry for the rant!!
Les
upanddown
upanddown
Last activity on 18/01/2024 at 19:36
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Hi,
my dermatologist is always hard to contact and I have to wait too long before the new appointment. Is it always like that or is it just me not being lucky and in this case should I look for some other specialist who will be more available??
magicmick
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magicmick
Last activity on 03/09/2024 at 07:59
Joined in 2018
39 comments posted | 4 in the Psoriatic arthritis Forum
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when on treatment my appointments used to be every 6 months or twice a year but they could have been more frequent say every 3 months that way it might have been found earlier that the treatment was causing other life threatening illnesses .my typical appointment when seeing the dermatologist was the usual weight test and blood test then in to see the doctor who just gave me another perscription and an appointment for 6 months i remember asking him several times if there were any new treatments around that i could try only his answer was only if your body was 80% covered .to be honest i think those with psoriasis should be seen every two or three months and a better treatment plan offered .
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Every three months, but I'm fighting to get seen sooner this time around. I'm on Methotrexate and it's killing me. I can't take the side effects. Painful fingers crossed!
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
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reikiboo64
@Courtney_J
Hi
Well where do I start!
I get frustrated by the constant exhaustion in my muscles. The slightest action feels like I have just done a work out to that part of my body whether it be an arm or a my legs for example.
I am aware that my disease isn't managed at all yet even though I have been diagnosed 18 months or so. It just feels like Russian Roulette with my medication as to whether I will be allowed to continue it from one blood test to the next as my liver rebells.
Everyday a new part of my body starts to creak and feel stiff and painful. To be honest it's scaring me just how quickly things are progressing. It is really getting me down. I can't walk far, self care is difficult . I'm determined to be independent so I'll struggle to succeed in the task.
I want to have the energy to get through my day as I work full time running a women's refuge which is mentally very demanding but fortunately not too physically. I'm so tired at the end of each day. It's an uncomfortable exhaustion. I also suffer from Narcolepsy diagnosed at a similar time to the arthritis, and this also gives me fatigue- I have a double whammy of fatigue.!
I am shielding at the moment so I have had a chance to rest. The first week off work I slept solidly and now I feel more rested. I confess I am anxious about becoming so exhausted again but I am determined this illness won't stop me from doing what I love.
Overall I feel distressed with it all and just want it to go away, My healing has gone to pot. I have put weight on as I can't exercise, I dread going upstairs and at times I just don't know how to deal with it.
Sorry to sound so down hearted, I just don't feel I can bring any positivity to this discussion.
x..
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Margarita_k
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Margarita_k
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Last activity on 07/10/2020 at 11:39
Joined in 2016
1,195 comments posted | 4 in the Psoriatic arthritis Forum
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What specialists do you see - your GP/rheumatologist/dermatologist/nurse, etc.?
How many prescriptions do you have per month?