Ovarian Cancer - Feeling Lost

Have faith you're in good hands and that technology and medicine has advanced so much . 

That is what got me through breast and now ovarian cancer treatment .  

You can ask your CSN 're regular monitoring post treatment. 

Gooduck with surgery and take it easy.  

Saw oncologist today I am in remission but have to take chemo tablets olaparib has any one else been on these and how did they get on with them 

Hello @minnymum78 

Thank you for your message and I'm sorry to hear you're going through such a hard time right now. Please don't hesitate to post updates on your situation, or even if you just need to talk, the community is here for you.

@Yuletimes‍ and @Maggie1‍ thanks for your replies. Members, does anyone else have experiences or questions to share on an ovarian cancer diagnosis?

Take care,

Michael

Hi I’m 4 years post ovarian cancer. I had primary piretonian .after 3 chemotherapy then debulking (hysterectomy) the 3 more chemotherapy. CA 125. Went from 2.300 to 35. 18 more chemotherapy called avastin..after 6 months my CA 124 crept up to 149. CT scan reveals small tumours on my kidney. 6 more chemotherapy. CA 125 back to 45. Now I’m on oral chemotherapy called zejoula . Having CT scan today to see if it’s keeping this tumour at bay.

good luck. There is life after Cancer. Not the same life but life. Yvonne 

@minnymum78 Hi minny,

I've just joined because I'd like to discuss the side effects of ovarian cancer treatment. I've been through the wringer and still standing. Send me any questions you like and I'll try my best. Take care, love, its gonna get better.

Hi Minny  l can remember the shock and desperation when l was first diagnosed l spent my time Googling symptoms and working out my life expectancy!  Nothing anyone said helped it was like l was on this treadmill which l couldnt get off.  But l got through it and l am such a wimp l am sure you will be better than me.  However I do wish there was more information and support regarding the side effects of the operation and treatment of ovarian cancer.  Take care and remember we are here to help and support you.  So ask away!

Hey Minny, I have just joined this group. I was diagnosed last wednesday and I feel the same as you and I'm terrified. I'm booked for debulking in two weeks then chemo 8 weeks after.

MoiraJ summed up whats happening to me right now.

I know I need to be positive and that will come in time, I hope it comes quickly. 

Hello @MoiraJ and @Frissco‍ 

Thank you for your comments and supporting this forum! And Frissco and Minnymum all the best in the coming months. Please do update us on how you're doing and feel free to reach out to me or any of the other members.

Take care,

Michael

@minnymum78 

hello

i am post surgery and they have removed everything and say I don’t need chemo. Still in pain but seem to have been left no so feeling lost and alone .

Thats exactly how l feel no support from GP  l feel so abandoned.  Still have pain and problems from operation.  Is this the new norm?  I am considering going private which l can ill afford just to talk to someone and hopefully get some advice.