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Do you have a VNS device?

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EPandMe

09/12/2022 at 12:25

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EPandMe

Last activity on 09/12/2022 at 12:20

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Hi all,

My doctor recently brought up the possibility of implanting an Vagus nerve stimulation (VNS) device. I'm considering it. I would love to negate my seizures as my medication is becoming less efficient. Does anyone have one? What does it feel like? Would you get it again?

Thank you for sharing your experiences.

EPand Me

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LizziB

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15/12/2022 at 20:02

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LizziB

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Hi @EPandMe

How are you today?

I will tag a few people who may be able to share their experiences.

@Josieferguson @Chantelle123 @Michelle4280 @47coisraille @Beth85 @Littlemissk3 @KennyMartin @Mrswillingham @Faehelen @Annie6 @Merbear33 @Alexwoodbell @Donna41 @Ryley21 @Meme6612 @J9lorna @Sarahbennet6789 @Paulayog @Rhianllew1985 @Adminops155 @gillian.preater @Hayley1979 @Emma723 @Jenster1978 @Jonboi67

Take care,

Lizzi

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Lizzi

Do you have a VNS device? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/do-you-have-a-vns-device-4904 2022-12-15 20:02:31

lesmal

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02/01/2023 at 14:05

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lesmal

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I have had epilepsy now for 49 years and am on the 8th trial medication. My seizures are mostly focal and I have a friend who has a VNS installed. It has taken years for him to get control of the seizures through VNS, but he is grateful now for less seizures. Having a VNS does not stop the seizures but can minimalize them to a certain extent. I do not have one inserted.

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Les

Do you have a VNS device? https://www.carenity.co.uk/forum/epilepsy/your-opinion-on-epilepsy-treatments/do-you-have-a-vns-device-4904 2023-01-02 14:05:33

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Do you have a VNS device?

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