PIP and epilepsy

My daughter suffers from Eplisey and she recently had a assessment and was given 0 points but the assessment 7 months before gave her full points so in seven months she has been cured , the assessor told lies on the report things that were never spoken about so my view of pip is it’s a massive con to deny disabled people the right to a normal life my daughter is 18

I agree. It is how you fill in the form that matters. You need to get help to fill it in. It will be worth putting in an appeal. 

My daughter is 42 and even though she does not live with me she needs my help with lots of things. 

We won her court tribunal last year then another assessment it’s a joke it’s made it hard for her to have a normal life she can’t use public transport because of her absents which will never be Controled 

I have just re-located to the country and told I have to wait for 2 years before I can claim for PIP... Hoping when my 2 years is up, I'll be able to comment further. 

I live in sheltered housing and the scheme manageress fills out all my forms as i just dont understand them

I have grand Mal epilepsy and have been up and down for years with it I also suffer from endarmetrosis and have applied for pip about 2 years ago but was refused? I can't work because of it. The forms are like books very complicated and difficult to get them right as I think that's the problem if you don't know what way to put things or are not good at writing or just filling these forms in then basically I think they just refuse people who are in terribly awful situations through illnesses and disabilities , citzecit advice bureau are very good at helping you fill forms in 

I have tried to get pip a couple of times but I have always been refused. They have said that my epilepsy is either well controlled or that I don't have it I'm making it up even though I've had epilepsy since I was a child.

I have grand mal epilepsy but, because I didn't have a fit in the office this man didn't believe me, he was just annoyed because I hadnt been able to keep my first PIP appointment because I had a small fit that day he obviously thought i am mot as bad as a really am because I hadn't gone to hospital preferring instead to stay at home in bed. This man who obviously wasn't a doctor thought I was OK and was just messing.

Recently I have had two bad falls while walking in the street ending in hospitals for a week both times - one resulting in countless stitches in my head he saw the scar and thought this was normal.

The only reason I got a low grade PIP is because he demanded I bend over and touch my toes eventhough I informed him I have vertigo which together with a bad back meant that when i tried to, I fell flat on my face!!

Epilepsy is a curse and changing tablets  when the neurologists decide I have to is annoying. I have been allergic to some of those. Not being allowed to drive because of my epilepsy is frustrating, feeling too ill to cook for myself after a fit is a real thing but if you don't look anorexic they dont believe you. 

@Margarita_k  am having problems getting pip please do u have any advice at all?

Hi @William.ra‍ , thank you for your question, but unfortunately I cannot answer it. I am not a healthcare professional, so I do not have any information on PIP. I suggest you talk to your doctor or visit this website: https://www.epilepsy.org.uk/info/daily-life/benefits

You will find a lot of information on benefits people with epilepsy are entitled to. I also advise you to talk to other peopl with epilepsy here on Carenity who have succeeded in claiming PIP.

Hope this helps!

Kind regards,

Margarita