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Patients Epilepsy

PIP and epilepsy

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Margarita_k

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30/11/2017 at 11:18

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Margarita_k

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Last activity on 07/10/2020 at 11:39

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Patients with epilepsy can benefit from Personal Independence Payment which is supposed to help people cover additional costs caused by their chronic illness. To receive the PIP you must go through a special assessment.

Have you already applied for PIP and gond through the assessment successfully? How much time did it take you and did you find the process of application easy?

If you didn't get the PIP, what was the motive for the negative answer? Did you then apply for reconsideration?

Are there any other disability/ill-health benefits you've applied for?

What is your opinion of the disability benefit system in the UK? What do you think should be improved?

Don't hesitate to join in the discussion and share your views and your experiences.

Thank you in advance for your participation!

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Margarita_k

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18/07/2018 at 15:17

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Margarita_k

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Last activity on 07/10/2020 at 11:39

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1,195 comments posted | 30 in the Epilepsy Forum

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Can anyone alse advise on what to do when one encounters problems while applying for PIP?

Your help will be much appreciated. Thank you!

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Community Manager

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-07-18 15:17:32

MrsELarkin

31/07/2018 at 00:34

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MrsELarkin

Last activity on 17/04/2025 at 00:39

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119 comments posted | 6 in the Epilepsy Forum

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As regards PIP I had mine turned down on first medical. I had been on DLA but the main reason for my negative result was apparently being able to reach into my handbag to produce a bus pass for ID! Two months later a separate medical for support group ESSA was granted! One cancelled out the other/crazy system!

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EileenL

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-07-31 00:34:58

Annalong

02/08/2018 at 08:39

Annalong

Last activity on 03/04/2025 at 02:54

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9 comments posted | 7 in the Epilepsy Forum

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The morning of an appointment for the PIP interview I had a fit and went back to sleep because I was tired after it took me ages to explain that to the PIP people. These assessors aren't medical people and haven't a clue.

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-08-02 08:39:19

MrsELarkin

28/08/2018 at 15:27

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MrsELarkin

Last activity on 17/04/2025 at 00:39

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My heart goes out to you Annalong! That could have happened to anyone suffering from Epilepsy and these so called accessors ought to have known this! Good Wishes to you Epilepsy Warrior!

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EileenL

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-08-28 15:27:20

Sunshine5

05/07/2021 at 14:23

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Sunshine5

Last activity on 17/04/2025 at 17:59

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75 comments posted | 29 in the Epilepsy Forum

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I have petit mal or absence seizures. I applied for PIP back in 2013, when my Working Tax credits stopped as I forgot to inform DWP about my epilepsy.

I was awarded the lower rate after submitting medical letters/reports from my Neurologist and Neuropsychologist.

I got help to fill my form in from a charity in Salford called Brain And Spinal Injury Centre (BASIC).

I was advised that even if you can do day to day things, look at the fact that without friends and family, assume you had a seizure unexpectedly, you could injure yourself and others. And answer questions on that basis.

After I lost my job on incapability due to epilepsy in 2016, despite a reduced workload (subsequently increased) rending it impossible to meet employers increased targets, I applied for PIP when it was due for renewal.

This time I received the higher rate as I have struggled to find any work and find it hard at home and when in employment, to follow complex instructions quickly.

I'm trying not to worry as I'm on 3 meds, had surgery to reduce my seizures in 2012, yet still having seizures.

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syusuf

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2021-07-05 14:23:07

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