Back

Patients Epilepsy

PIP and epilepsy

202 views
13 times supported
16 comments

Margarita_k

Community manager

30/11/2017 at 11:18

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 30 in the Epilepsy Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Patients with epilepsy can benefit from Personal Independence Payment which is supposed to help people cover additional costs caused by their chronic illness. To receive the PIP you must go through a special assessment.

Have you already applied for PIP and gond through the assessment successfully? How much time did it take you and did you find the process of application easy?

If you didn't get the PIP, what was the motive for the negative answer? Did you then apply for reconsideration?

Are there any other disability/ill-health benefits you've applied for?

What is your opinion of the disability benefit system in the UK? What do you think should be improved?

Don't hesitate to join in the discussion and share your views and your experiences.

Thank you in advance for your participation!

All comments

Go to the last comment

Margarita_k

Community manager

18/07/2018 at 15:17

Good advisor

Margarita_k

Community manager

Last activity on 07/10/2020 at 11:39

Joined in 2016

1,195 comments posted | 30 in the Epilepsy Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

Can anyone alse advise on what to do when one encounters problems while applying for PIP?

Your help will be much appreciated. Thank you!

See the signature

Community Manager

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-07-18 15:17:32

Mrs E Larkin

Ambassador

31/07/2018 at 00:34

Good advisor

Mrs E Larkin

Ambassador

Last activity on 04/12/2024 at 00:34

Joined in 2015

114 comments posted | 6 in the Epilepsy Forum

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

As regards PIP I had mine turned down on first medical. I had been on DLA but the main reason for my negative result was apparently being able to reach into my handbag to produce a bus pass for ID! Two months later a separate medical for support group ESSA was granted! One cancelled out the other/crazy system!

See the signature

EileenL

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-07-31 00:34:58

Annalong

02/08/2018 at 08:39

Annalong

Last activity on 23/09/2024 at 00:12

Joined in 2017

9 comments posted | 7 in the Epilepsy Forum

Rewards

Contributor
Explorer

View profileView Add a friendAdd Write

The morning of an appointment for the PIP interview I had a fit and went back to sleep because I was tired after it took me ages to explain that to the PIP people. These assessors aren't medical people and haven't a clue.

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-08-02 08:39:19

Mrs E Larkin

Ambassador

28/08/2018 at 15:27

Good advisor

Mrs E Larkin

Ambassador

Last activity on 04/12/2024 at 00:34

Joined in 2015

114 comments posted | 6 in the Epilepsy Forum

15 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Committed
Explorer
Evaluator
Friend

View profileView Add a friendAdd Write

My heart goes out to you Annalong! That could have happened to anyone suffering from Epilepsy and these so called accessors ought to have known this! Good Wishes to you Epilepsy Warrior!

See the signature

EileenL

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2018-08-28 15:27:20

Sunshine5

05/07/2021 at 14:23

Good advisor

Sunshine5

Last activity on 01/12/2024 at 12:35

Joined in 2017

63 comments posted | 23 in the Epilepsy Forum

13 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator

View profileView Add a friendAdd Write

I have petit mal or absence seizures. I applied for PIP back in 2013, when my Working Tax credits stopped as I forgot to inform DWP about my epilepsy.

I was awarded the lower rate after submitting medical letters/reports from my Neurologist and Neuropsychologist.

I got help to fill my form in from a charity in Salford called Brain And Spinal Injury Centre (BASIC).

I was advised that even if you can do day to day things, look at the fact that without friends and family, assume you had a seizure unexpectedly, you could injure yourself and others. And answer questions on that basis.

After I lost my job on incapability due to epilepsy in 2016, despite a reduced workload (subsequently increased) rending it impossible to meet employers increased targets, I applied for PIP when it was due for renewal.

This time I received the higher rate as I have struggled to find any work and find it hard at home and when in employment, to follow complex instructions quickly.

I'm trying not to worry as I'm on 3 meds, had surgery to reduce my seizures in 2012, yet still having seizures.

See the signature

syusuf

PIP and epilepsy https://www.carenity.co.uk/forum/epilepsy/living-with-epilepsy/pip-and-epilepsy-2082 2021-07-05 14:23:07

Members are also commenting on...

Articles to discover...

30/10/2024 | Advice

Epilepsy and pregnancy: What should you know before conception?

12/02/2024 | News

Epilepsy surgery: everything there is to know!

13/02/2023 | Advice

How to live well with epilepsy?

17/11/2022 | News

8 myths and misconceptions about epilepsy

11/02/2019 | Advice

Understanding epilepsy: what are the different types of seizures?

24/10/2018 | News

Epilepsy medicines pregabalin and gabapentin to be reclassified as class C drugs

27/08/2018 | News

Young Scot ‘crippled’ by epilepsy gets first dose of medicinal cannabis

20/09/2018 | News

Removing 'zombie' cells deters Alzheimer's in mice

PIP and epilepsy

All comments

Give your opinion

Members are also commenting on...

Articles to discover...

Medication fact sheets - patient opinions...