- Home
- Share
- Forum
- Epilepsy Forum
- Treatments for epilepsy
- How many different medications have you tried?
Patients Epilepsy
How many different medications have you tried?
- 37 views
- 2 times supported
- 5 comments
All comments
William.ra
William.ra
Last activity on 13/06/2022 at 18:44
Joined in 2018
I have taken 4 medications
Annalong
Annalong
Last activity on 23/09/2024 at 00:12
Joined in 2017
9 comments posted | 7 in the Epilepsy Forum
Rewards
-
Contributor
-
Explorer
I have taken at least 9, two of which I have been allergic to Keppra and another one I sant remember the name of both made me violently ill, I couldn't eat, sleep, think straight, walk, keep water down so I stopped taking them and got on to my epilepsy nurse. And gave out to the neurologist for doing it to me in the first place - they like to trsat you like lab rats don't they ?
lesmal
AmbassadorGood advisor
lesmal
Ambassador
Last activity on 24/12/2024 at 06:40
Joined in 2018
1,437 comments posted | 78 in the Epilepsy Forum
60 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
The list is too long to remember, and also what worked and what didn't.
I have never stopped taking my medication in the 44 years I've had epilepsy... It's not worth risking!
See the signature
Les
Sunshine5
Good advisor
Sunshine5
Last activity on 22/12/2024 at 18:51
Joined in 2017
63 comments posted | 23 in the Epilepsy Forum
13 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Evaluator
I have taken many medications since I was diagnosed when 4 months old. Im turning 38 very soon and very rarely miss a dose.
I wouldn't stop taking my meds as even taking them diligently and having had surgery 6 years ago, has not stopped my seizures. It has reduced the frequency of episodes though.
Since taking Clobazam with Epilim, 4 years ago, my fits are stable and I have 4 to 5 complex partial absences a month.
See the signature
syusuf
monaco
monaco
Last activity on 11/09/2021 at 10:13
Joined in 2015
2 comments posted | 1 in the Epilepsy Forum
Rewards
-
Explorer
-
Evaluator
I have now tried 17 or 18 different meds since birth. Now 52. Nothing else left - waiting for new meds! Also have had VNS for 18 years!
Give your opinion
Members are also commenting on...
Articles to discover...
30/10/2024 | Advice
Epilepsy and pregnancy: What should you know before conception?
12/02/2024 | News
13/02/2023 | Advice
17/11/2022 | News
11/02/2019 | Advice
Understanding epilepsy: what are the different types of seizures?
27/08/2018 | News
Young Scot ‘crippled’ by epilepsy gets first dose of medicinal cannabis
20/09/2018 | News
Medication fact sheets - patient opinions...
Subscribe
You wish to be notified of new comments
Your subscription has been taken into account
Margarita_k
Community managerGood advisor
Margarita_k
Community manager
Last activity on 07/10/2020 at 11:39
Joined in 2016
1,195 comments posted | 30 in the Epilepsy Forum
1 of their responses was helpful to members
Rewards
Good Advisor
Contributor
Messenger
Committed
Explorer
Evaluator
How many different treatments have you tried before finding the one(s) that work the best? How much time did it take you on the whole?
Have you ever stopped taking your medications? Why was that? What was the effect?